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Scottys story

Hello fellow PBHers. Well I promised you an update when i knew more so here it is. I prefer to start at the beginning if its ok with you.
About 2 1/2 years ago, i felt pain just above my stomach, had a endoscopy done and was pronounced with EC Esophagus Cancer. I was told i had about a 36% chance to live with the surgery.
I spent 9 hours on a surgeons table, 6 days in a ICU and 26 days in the hospital, i lost 59 pounds, and i spent another 4 months at home recoverying. The entire incident was horrible and i wouldnt ever wish it even on my enemys.
Well to make a long story short i survived, gained back my weight, got strong, went back to work and even managed to get in a 15 day trip to Cali.
I thought i was a pretty damn lucky guy beating a cancer with only 36% chance, i was to say the least a happy guy, even a little cocky about it all.

Now 2 1/2 years later the cancer has returned, this time the tumor is bigger and it is spreading, as of today the tumor has almost completely blocked off my esophagus to the point that i can barely swallow water and juice, i must crush up all my medications and vitamin or mix them in the water.
I have lost 9 pounds in the last 10 days and i am getting weaker each day.

I have spent the last 3 weeks going from doctor to doctor and from test to test, i have been poked so many times i have purple arms.

Today i met with two very important people my Oncologist and my Surgeon and here is what they have to say. First they made it clear to me that i have a serious case of cancer and if i want to live then i will be required to go through hell for about the next 5 months and even after that they cannot promise me life, infact my Oncologist gives me a 25% chance of recovery.
My treatment will begin as early as next week in this order 1blood tests, 2. Pet Scan, .3; surgery to put feeding tube into my stomach, 4. Radiation, 5. Chemotherapy, 6. rest for 3 weeks, 7. esophagus cancer surgery, 8. stomach hernia surgery, 9. 20 to 28 days in hospital recovery, 10. home recovery for about 3 months.
I am told this proceedure will wipe me out physically, emotionally and every other way.
I am told it is tough and painful and if i can survive this and everyone does their job right then i could continue to live a fairly normal life.

Note concerning the Radiation and the Chemo therapy, these treatments will be very agressive they will both be given at the same time i will go into chemo and when finished walk across the hall and recieve my Radiation. This will last 5 days a week for 6 weeks. i will lose my hair, weaken substantually, turn pale yellow skin, have nausea, headaches, and feel as if i have the flu all the time. i will be on anxiety medication and prozac and pain medication.

Right now i am on anxiety medication, and a liquid diet with some soft foods like yogurt.

As you must imagine i am worried, nervous and somewhat in denial. I really am not looking forward to going through this hell again but as one of my doctors said I only have two choices.

Anyway, the medical team is first class, they have a reputation in this state as being very agressive and attacking cancer with a vengence. In fact recently a man in Texas with EC was dying his doctor told him he had about 4 days to live, he called my Oncologist and then flew out here to Phoenix, my doctor began treating him immediately and that was 5 months ago. So i do have a no nonsense agressive medical team behind me.
I told them if they would be very agressive and fight for my life i will certainly do the same and fight for my life.

I now want to thank the PBHers for supporting me and for being my friends. I would appreciate any prayers on my behalf and please if you have any suggestions i will listen to them all.

If you have any comments, or questions please feel free to post them, i will gladly respond.

Scotty

By scotty on Mar 31, 2008, 23:09 in Off Topic.


msaucey says on Mar 31, 2008, 23:17:

Scotty, you are in my daily thoughts... You are of strong mind and will... You will beat this cancer and not the other way around....

I know you will do everything necessary and as directed by the doctors, so I wont give you that speech....

We'll be here waiting for you whenever you want to chat...

The trouble about trying to make yourself stupider than you really are is that you very often succeed. - CS Lewis

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scotty says on Mar 31, 2008, 23:21:

thanks msaucey, you guys are a good bunch of eggs. yea i have made the decision to fight this thing to the end, either its gonna win and kill me or im gonna win and once again fly to Cali.

i am following the doctors orders to the T,

you are welcome to ask any questions or make any comments anytime.

take care and thanks for your support msaucey

Get Rhythm, when you got the blues. Johnny Cash

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DodgerDogs says on Mar 31, 2008, 23:22:

Scotty: Honest to God, I am so verry sad to hear what you been going through, and what you
will have to go through. I pray the good Lord will help you have the strength and courage to
face all that you must endure. I will keep you in my daily prayers and thoughts, and do hope to know you return to Cali one day.

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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scotty says on Mar 31, 2008, 23:28:

thanks DD, I appreciate your prayers and support. like the Doc said "you have two choice, death or fight it" i choose to fight it.
i figure with a good team of doctors, lots of friends support, prayer and just plain attitude i can beat this.
thanks again DD

Get Rhythm, when you got the blues. Johnny Cash

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travelingirl says on Mar 31, 2008, 23:30:

My goodness, Scotty. I am so sorry you are going through this. You will definitely be in my prayers.

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scotty says on Mar 31, 2008, 23:31:

thanks Tgirl, appreciate the support and prayers.

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on Mar 31, 2008, 23:31:

Scotty, we won't lose the faith and neither will you. Be strong. Get on PBH periodically and let us make you laugh when times are rough. It sounds like you're in very good hands medically.

It sounds like there's not much you can do this week, but keep us company online? Don't dwell upon what's to come OK? Mental strength....it's very powerful.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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travelingirl says on Mar 31, 2008, 23:34:

Yes, you should try to get on here so you can at least make fun of the democratic candidate before the election and make me laugh. ;) Or maybe I should come up with my own stuff and try to make you laugh. hehe

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msaucey says on Mar 31, 2008, 23:35:

For a good laugh, check out the Romantic Post tomorrow after Dan sees it... Now that will be funny....

Love, Laughter, and Friendship can get you through a lot of tough points in life...

The trouble about trying to make yourself stupider than you really are is that you very often succeed. - CS Lewis

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scotty says on Mar 31, 2008, 23:42:

i agree with you guys, nothing better than laughter, in fact im going to rent some comedy DVDs and try to yuk it up a little bit.
and yes i will come to PBH and search for some laughs.
as for the candidates, gee they are all just so terribly bad i dont even know where to begin. G_S had the best one when he posted McCain, Obama and Hillary as Curly, Moe and Larry of the three stooges, that picture discribes just how i feel about the political scene this year.
im trying my best to keep my spirts up, sometimes its hard to do but with wacky PBHers i think i can do it.

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on Mar 31, 2008, 23:58:

Funny DVD's and goofball characters on PBH. That'll cure all ails! :-)

You may want to pick up some comedy series Scotty! Anything to get you to laugh. Plus if they're only 30 minutes long, it's not much of a time commitment for you when you're tired. It gets rough sometimes trying to stay awake through a movie when you're tired!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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scotty says on Apr 1, 2008, 00:58:

yea good idea Hgal. im trying real hard to be upbeat, its hard to do, but i figure you are right between PBH, DVDs and my family and friends arounf here i will try to keep my mind free and not think about what is soon coming my way.

i will be checking in with PBH fairly regularly until of course i am unable to do so.

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on Apr 1, 2008, 02:21:

You are one stand-up guy Scotty. May God keep you safe in your ordeal. We will be thinking of you constantly. Please, please stay in touch and keep us updated whenever you can.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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Cerealkiller says on Apr 1, 2008, 04:53:

Well Scotty, Ive always thought you're a conservative bastard *laughs* but that doesn't mean I totally hate you. I am sorry you're going through a rough time and I sincerely hope that everything gets better. Be strong and stay determined. Life is like a mistreating husband and we are the stupid battered wives: wishing it never ended (I know, cruel joke, but it makes me laugh when I'm down). Plus, Im sure you've heard the saying: Hierba mala nunca muere!!! :)

Conservatives are not necessarily stupid, but most stupid people are conservatives -John Stuart Mill

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aztec says on Apr 1, 2008, 07:10:

Scotty I have some knowledge of where you are in your quest for life.

My first wife was diagnosed with AML which is an acute form of Leukemia. We wanted to go to M.D. Anderson but elected instead to go to Emory.

The treatment and chemo gave her one year before the cancer returned. After that she went through 18 total chemotherapy sessions that resulted in remission each time. The trouble was that each remission got shorter and shorter. The secessions were horrible and terrifying for her and the whole family. This process went on for three and a half years before her death.

What I would like to relay in as gentle a manner as possible is the knowledge we must all die sometime. That and the realization there was nothing humanly possible anyone could do to change the inevitable outcome forces you to make decisions. There comes a time when the quality of life left to a person is too short to endure the torture of medicine to prolong the life not worth living. In other words you must decide if the quality of life left is remotely worth the horrible experience and pain.

In our case my wife had made a decision not to endure the last treatment. We persuaded her to proceed against her wishes. It turned out to have been a mistake. What was impacting on the decision was what the family wanted and not what was in her best interest. We could not face the possibility she would not come home. She left two teen age boys without a mother.

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goin_south says on Apr 1, 2008, 07:51:

Scotty...
I'm a crazy mf;
but, I'll stop and be in spirit of prayer on your behalf.... more than once a day.
you got "more than two, gathered together", here, so........!!!
Look for a pm tonight.
Every day is a great day.
Sometimes we have to go through.... the perfect storm.
You're gonna make it,.....TOO!
Ciao, dude!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 1, 2008, 11:47:

thank you all of you for your good wishes and support. i have been thinking about this alot and often times i have thought of just giving up and not going through the torcher of radiation, chemo and surgery and still will probably die.

i have alot of thinking to do and alot of preperations to make, the clock is ticking and i need to make many decisions.

thank you all, and yes i will on occasion check in to PBH and answer all questions and comments.

Get Rhythm, when you got the blues. Johnny Cash

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DodgerDogs says on Apr 1, 2008, 12:08:

Scotty: Keep in mind as a opition ,one of the best Cancer clinics in the world is in Bogota, Colombia with 70 plus year of experience. they use many cancer fighting procedures not yet
approved in the USA.
Here is part of a news articule about them.

http://www.medicalnewstoday.com/articles/102056.php

Instituto Nacional de Cancerologia is a leading public institution with more than 70 years of experience with many diverse oncological diseases. Innovators in the treatment of cancer, the Instituto Nacional de Cancerologia has helped implement techniques for minimally invasive surgery for cancer and other diseases. Their Pediatric Oncology Group is a leader in Colombia and one of the most highly recognized in Latin America.

For more information about Instituto Nacional de Cancerologia, please visit: http://www.incancerologia.gov.co

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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scotty says on Apr 1, 2008, 16:04:

thanks DD, i see several problems with that in my situation.
1. my insurance wont pay for medical treatment in another country
2. two my spanish is malo
3. my family and neighbors are here in AZ to support me, i dont want to be around a bunch of strangers while suffering through cancer.
4. USA also has some of the best hospitals and doctors in the world
5. a friend of mine 3 years ago decided he was going to a SA country to cure his cancer, i think he went to either Ecuador or Bolivia, he was there about 3 months, came back home, 3 days later started spiting up blood and fell over dead.
thanks for the thought but i think i will stay right here.

Get Rhythm, when you got the blues. Johnny Cash

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aztec says on Apr 1, 2008, 16:19:

3. my family and neighbors are here in AZ to support me, i dont want to be around a bunch of strangers while suffering through cancer.

Exactly why we decided on Emory rather than M.D. Anderson. The treatment is bad enough but without the support of family is a living hell.

Scotty, it is your life and your body. It is your decision and you have a right to do nothing. However, if the doctors think you are better off with the treatment ie good chance of success then go for it.

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scotty says on Apr 1, 2008, 18:28:

well aztec i think about this constantly. i go back and forth if i should just stop the fight and go out the easy way or fight it and try to win the battle.
remember, i have been through this before, and i know what hell it is, so i am what you may call a little gun shy. i want to live but do i want to go through 5 months of hell to live and even then maybe lose and die anyway.
i am still deciding, im still researching, im still talking to doctors, second and third opinions.

Get Rhythm, when you got the blues. Johnny Cash

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Man Tequila says on Apr 1, 2008, 20:08:

I was saddened to hear about your ordeal, Scotty. Keep you chin up, don't lose hope, eat whatever you enjoy to keep up your strength, tell the folks you love that you love them. You'll be in my thoughts.

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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scotty says on Apr 1, 2008, 20:48:

thanks MT appreciate your support. im eating and drinking everything that will go down.

i just got off the phone with a guy that made me feel positive, he had the same thing i had. he was treated with an agressive radiation and chemo and the cancer completely went away, he didnt even have to undergo surgery.

Get Rhythm, when you got the blues. Johnny Cash

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eywed says on Apr 1, 2008, 21:25:

Scotty I have one full unopened can of Pilsen beer hidden away in my house. It's a prize possession of mine and it's your once you get better.

Ay Hombe!!!!!

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Man Tequila says on Apr 1, 2008, 21:38:

That's your prize possession? Man, and I was feeling sorry for SCOTTY... ;)

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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podborski says on Apr 1, 2008, 22:02:

Don't think about the odds scotty, I doubt the docs really know whether your chances are 25% or 75%. I imagine they play it conservatively.

Just stay positive and look forward to the day when you beat this. I hope we can have a drink one nice night in Bogota, once you have recovered.

You did it once, you can do it again. Good luck.

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scotty says on Apr 1, 2008, 22:45:

you guys really know how to make a guy want to fight for his life, tempting me with beer and Bogota. keep that Pilsen on ice eywed.
if i make it through this i think every PBHer that can make it should meet up in Bogota or Cali or somewhere in Colombia and we need to have a "I beat the cancer twice party" and eywed can present me with his treasure beer.
you guys are great thanks for the support!

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 1, 2008, 23:05:

I 4 1.... wouln't miss the party!

Hey, scotty... I was going to pm ya, but... awwwh.. wth?! I might as well air it here...
When I was 5 years old... I was diagnosed as having Hodgkins Disease... 'the docs'.. gave me 6 months to live.....

(Hey! eyewed! YOU GOT AN EXTRA PILSNER???... jaj)

Anyway.... here I am... 82 years later.
welll... that's how old I think I'm gonna be by the time my (transplanted) Pastusa gets her cula de Caleña up here to de eeuu.... :-)))

and, you didn't pm me... so how do I know which of those addresses is yours?
Don't Worry; Be Happy... I'm gonna find ya.... in Bogota... alive... don worriiiibbbbbb happy!

You betta stay in touch, dude.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 2, 2008, 00:08:

Duck you trying to get my beer?

So GS they all thought you were a goner and you fooled them and grew up to be a Duck. Glad you made it.

I just recieved an interesting email from a man who had the same cancer as i did and his also returned after 3 years of being cancer free.
he was then treated with radiation and chemo and is still alive today 4 years later.
so maybe i have a chance after all. i am feeling more positive everyday.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 2, 2008, 00:15:

Is there sucha thing as a "Duck's Chance?"

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 2, 2008, 01:33:

G_S i recieved your PM , thanks nice email. you are welcome to Pm me anytime duck dude.. i gots to go to bed now, my sister is taking me to the zoo tomorrow, we want to talk, it may be my last real opportunity to spend some time with her.
good night everybody.

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on Apr 2, 2008, 04:52:

You're on scotty.

When it's all over, come on down to Valle del Cauca and I'll introduce you to my sister-in-law..

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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paulr says on Apr 2, 2008, 06:36:

Scotty, not sure if you´ve read "It's Not About the Bike: My Journey Back to Life" by Lance Amrstrong? thought it was very inspirational, if you´re not up for reading right now, you can download the audio book, after a quick search i found it here

http://www.theaudiobookstore.com/servlet/-strse-465/Its-Not-About-the/...

Good luck with everything Scotty

"paulr threatens me with death !" pobrecito

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eywed says on Apr 2, 2008, 09:52:

I have but one can of Pilsen and it is now being saved for Scotty. It is prized to me because of the friend that gave it to me. There is no pilsen to be had here in Tampa, Florida so I was keep it for a speical occasion. I can not think of any better speical occasion than a Scotty beat cancer party, Can any of you?

Ay Hombe!!!!!

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christobeldawg says on Apr 2, 2008, 22:12:

Scotty, so sorry for your health issues. I hope that you have thought about the reasons that you would like to continue to live, as in, and I don't want to be out of line here, as I know the medical problems are very real, but have you really thought about the compelling reasons, the passionate reasons for staying around here, and living a life that brings fulfillment and joy to you. Good luck friend, we all love ya here.

traveling hopefully is always better than arriving

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scotty says on Apr 2, 2008, 22:26:

dawg, im goin to Colombia and meet all the PBhers i can and im gonna get that beer from eywed.
there is so much i want to do yet, i think its worth fighting for life.

oh, and thanks for the call Duck, the Duck called me tonight and wished me the best, that Duck he is a -ok!

Get Rhythm, when you got the blues. Johnny Cash

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christobeldawg says on Apr 2, 2008, 22:45:

Colombia is my second home now Scotty, so pm me when you will be in Bogota, as I am there more and more lately. as goinsouth is well aware of. right gs, mister language mystery quipster?

traveling hopefully is always better than arriving

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scotty says on Apr 3, 2008, 00:09:

looking forward to meeting you some day dawg. give me a few months to kick this cancers ass and before you know it i will be having a beer with you in Colombia. we'll all get together and party down!

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 4, 2008, 01:31:

I'll check in with you guys once a week and give you the updates. right now nothing happening, next week the fire works start.
take care all eat your veggies and dont smoke.

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on Apr 4, 2008, 02:03:

And you take care brother.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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scotty says on Apr 4, 2008, 15:32:

how you doin bro? and how are things across the pond?

Get Rhythm, when you got the blues. Johnny Cash

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Portena says on Apr 4, 2008, 19:08:

Keep your spirits up, Scotty! Try to find something enjoyable to focus on everyday - even if it's just sitting outside on a sunny day and watching nature in all its beauty. Pod is right - it's pointless to think about the odds. You're obviously a very resilient individual having survived that first strenuous battle to live. You will be in my thoughts and prayers.

Prophesy is a good line of business, but it is full of risks ~ Mark Twain

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goin_south says on Apr 4, 2008, 19:11:

He sounds good! My $'s on scotty; not the ca.
But, I'm gonna have to paint or find a new avatar 4 'm.... scotty, a new, brighter avatar! por favor.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 4, 2008, 19:30:

Guys Im feeling a little more positive today, my Oncologist called me and said some positive things. He thinks we can beat this thing with a good chemo/radiation plan.He told me about the same thing that you guys said to be positive enjoy the sunny weekend and we will take this thing one step at a time.
thanks for your support.

Get Rhythm, when you got the blues. Johnny Cash

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Monpirri says on Apr 4, 2008, 20:01:

That's awesome!!!
Scotty, I wish you a speedy recovery.

"Anyone who still thinks that Colombia is not a gastronomical paradise needs to have their head examined." Darloup

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christobeldawg says on Apr 4, 2008, 22:09:

good news Scotty. We will have a celebration, well, celebrating, your being well again. As you are taking the treatments, appreciate all that you have to look forward to, all that you want to see and experience. I am prayin for ya my friend, to keep getting better and better.

traveling hopefully is always better than arriving

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scotty says on Apr 4, 2008, 23:43:

thanks Monpirri and Dawg, its all about one day at time now. I should really know what is going on by the 14th or 15th of April that when all the final test results will be in and the doctors can make some decisions.
I think Im going to post an update once a week maybe every Sunday or Monday.
thanks for your support.

Get Rhythm, when you got the blues. Johnny Cash

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Man Tequila says on Apr 4, 2008, 23:53:

Scotty, that sounds like great news.

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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goin_south says on Apr 5, 2008, 00:00:

scotty,... something to think about your woman in Cali:

La mujer no quiere una mirada, quiere una sonrisa.
La mujer no quiere compañía, quiere presencia.
La mujer no quiere llanto, quiere lágrimas.
La mujer quiere, lo que es más sencillo otorgar.
La mujer no busca una mano, busca tacto.
La mujer no busca momentos, espera acontecimientos.
La mujer no busca tu risa, espera tu alegría.
La mujer ofrece, lo que siempre has podido dar.
La mujer no desea un cuerpo, desea un abrazo.
La mujer no desea halagos, desea palabras.
La mujer no desea unos labios, desea un beso.
La mujer no desea ser persona, desea ser mujer.
La mujer no espera tu tiempo, espera tiempo contigo.
La mujer no espera pasión, espera romance.
La mujer no espera sexo, espera amor.
La mujer no espera belleza, espera la hagan sentir bella.
La mujer es mujer, no la trates como a un hombre.
La mujer es mujer, no es física, es sentimental.
La mujer es mujer, no es cuerpo, es corazón.
La mujer no eres tú, no la trates como esperas que te traten.
La mujer no es para poseer, es para admirar.
La mujer no es para convencer, es para amar.
La mujer no es para conocer, es para entender.
La mujer no es lo que tú crees, ella es mucho más.
La mujer no es un rostro, es un todo.
La mujer no es difícil, es misteriosa.
La mujer no es tacto, es caricia.
La mujer no es la espina, es la rosa.

pretty mushy, eh?
aaawh, well... probably some truth in there.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 5, 2008, 01:02:

mushy but nice to.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 5, 2008, 05:58:

well, jajaj, it was a woman that sent that to me (not mine), .......
.......whadya think?

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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Robert Jorge says on Apr 5, 2008, 21:18:

Scotty, you will do anything to break our javelina hunting trip date.

But seriously, I will be thinking about you. I am not good at mushy stuff, so forgive me for being somewhat inarticulate. I am looking forward to the Scotty beat cancer party in Bogota. Count me in. Anyway, hang in there, and good luck the next several weeks. You are going to be in a lot of people's thoughts and prayers.

"You can not take the barrio out of the girl you really can't." Oneforamillion

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houstongal (Trustee board) says on Apr 5, 2008, 22:04:

Hey...even I would come to Bogota for a "Scotty beat cancer" party!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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christobeldawg says on Apr 5, 2008, 22:11:

yo tambien. I like being there anyway, so that will give me even more of a reason to be there.

traveling hopefully is always better than arriving

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goin_south says on Apr 5, 2008, 22:24:

Oh Lord!!! And, Hg will be there?!?!?!!!!!!!
Scotty,.. do you know what it takes to get this woman to Colombia????
(It's top secret)
I'd better get working;
I can see a party in Bogota, before my (planned) time.
WTH! I'm like Chris... I like goin_there anyway!!!
Go! scotty,...Go!

You think my pastusa/caleña will let me go back to Bogota without her???
jajaja... guess again!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Apr 5, 2008, 22:36:

I'd do anything for Scotty! I've never had a post created for me before and I was touched that he did that! It's the least I can do for the guy.....he can see my smiling face in person. But he's got to stay positive and get through this!

Of course, that's assuming that there's no travel conflict with whatever date this event will be!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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goin_south says on Apr 5, 2008, 22:46:

jajja, I'll write you a 'sick note'... bad back syndrome.. no worries , Hg!!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Apr 5, 2008, 22:51:

jajaja....GS. Bad back syndrome.

I pretty much have to be on my death bed (sorry Scotty...I didn't mean to offend) to get out of working! I went to Mexico sick and I ended up getting worse by the third week.

But after May my travel schedule is actually fairly light.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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goin_south says on Apr 5, 2008, 23:08:

scotty... I'm thinking we're starting that party somewhere here in the usa... and, then moving it to bogota. whadya think?

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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Robert Jorge says on Apr 5, 2008, 23:27:

Destin would be a fairly central rendevous point for us. (yes, that's an invitation)

"You can not take the barrio out of the girl you really can't." Oneforamillion

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goin_south says on Apr 5, 2008, 23:56:

Destin Central.
Si, jorge....
what map are ya lookn at???

.
.
.
.jaja, I was thinkn the big D, myself, too.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Apr 6, 2008, 05:55:

I'm so glad you pointed that out. I was definitely thinking somewhere in Texas for Scotty since he is in Arizona! RJ has a quite a distorted map of the US!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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scotty says on Apr 6, 2008, 17:16:

Weekly Update: Not alot to report on medically, I have an appointment with my general surgeon Tuesday to talk about inserting a feeding tube. On Wed. i have a Pet Scan appointment, other than that the medical portion is quiet for now.

I am having a more difficult time swallowing food and even liquid is sometimes difficult, i hope they get that feeding tube into me sooner than later.

This week for me was more of a positive emotional time. i have been spending lots of time with friends and family, having a few laughs and enjoying their company.

Wednesday my sister treated me and my mother to a trip at the Zoo, it was a nice day and we all enjoyed ourseleves.There was one part of the trip that was especially intertesting i didnt even know they had this at the Phoenix zoo. There is a area with the theme "Colombia," they have a small village built there, and animals from Colombia and South America.

Saturday was also a good day at the local classic car show i met up with several friends where we checked out the great classic cars and had some laughs, and i heard some new jokes, remind me sometime and i will tell you the one about the bank robber.
Also at the car show one of my buddies hired a service of models to come out to the car show and pose with me, we had a blast 3 lovely models dressed in 50's style cloths posing with me for pictures and video, it was a blast!

I also recieved a call from my Oncologist on Friday because he knows i have been feeling a little down, he assured me that he will come up with a plan and he will fight this cancer. He asked me to remain calm, be positive, and we will get through this.

So the call from the doctor, the zoo trip and the classic car show adventure perked me up, i am feeling alot more positive and ready to take on this cancer.

By the way i have been recieving some positive PM's from some of you PBHers, thank you very much, very nice of you to do that.

Ok, everybody i will check in again next week.

If you have any comments or questions or suggestions please feel free to post them and i will answer each one a s a p.

Take care PBHers
Scotty

Get Rhythm, when you got the blues. Johnny Cash

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DodgerDogs says on Apr 6, 2008, 19:40:

Scotty: If you can , post those pics of the car show.
Stay cool and stay strong , and know as I said in my emails , I will keep you in our prayers
and thoughts.

de Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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podborski says on Apr 6, 2008, 22:29:

glad to hear you are staying positive scotty, all the best to you! (p.s. the series 1 jag e-type is my pic as all time best classic car, based on looks, price, performance...)

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scotty says on Apr 6, 2008, 23:30:

there were 7 ot 8 jags out there last night, beautiful car!

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on Apr 7, 2008, 07:48:

I had one, a 1964 "Opalescent-silver-blue with biscuit interior". They even know how to make paint colours sound great.

Just don't mention the overheating problems : (

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scotty says on Apr 9, 2008, 00:33:

did you say had? man you should have hung on to that car.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 10, 2008, 21:55:

Update: Hello everyone, well heres an update on my situation.

Tuesday - I had a consultation with the general surgeon concerning surgery to repair an abdominal hernia and to insert a feeding tube.

Wednesday- I was given a Pet Scan, the results will be sent to the doctors.

Thursday - I went to the radiologist where i was given a CTscan and did a simulation of radiation treatments, it wasnt a pleasant day.
After wards i went to the lab where i had to recieve a blood test.

Im burnt out already and the real stuff hasnt even started yet.

I go to the hospital Monday for pre op .

I go back to the hospital Tuesday for surgery on the hernia and to insert a feeding tube.

Hope you are all fine, take care,
Scotty

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 10, 2008, 22:42:

Remember...
.........................SERENITY

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 11, 2008, 00:00:

one day at a time.

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on Apr 11, 2008, 02:59:

Take care brother.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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slguy says on Apr 11, 2008, 06:21:

Scotty, man, it took me a couple days just to digest this thread. I still have no real meaningful stuff to say...except maybe this -

I have seen the evidence too often not to know how powerful a tool the mind is. You're a tough, passionate, intensely caring guy. My money's on the "I kicked cancer's ass!" Bogota party.

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 11, 2008, 14:48:

thanks Kalder.

thanks slguy, i fought this damn cancer three years ago, i am ready to fight it again. no one can promise the future but we can fight for what we want and i want life, so let the battle begin.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 11, 2008, 14:55:

maybe we could move that party 'out into the caribbean tip of Colombia...
... on a new yacht.... spin some circles around San Andres.... look for Wycliff Jean dancin on the water wid Shakirrrra....?

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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slguy says on Apr 11, 2008, 17:47:

now there's an idea! blowout party in cartagena, or at the new Santa Marta marina! with Scotty as Master and Commander of the sailing vessel for the event...

(don't worry, Scotty - us seafairing folk have your landlubbing arizona ass covered! ;) )

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 11, 2008, 18:23:

slguy i was in the Navy for 4 years, i was on an aircraft carrier...but i still like land better.

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on Apr 11, 2008, 19:20:

This will be Scotty's party and we'll hold it wherever he wants! Good luck next week Scotty! Enjoy your weekend!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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podborski says on Apr 11, 2008, 19:30:

that's the attitude Scotty, one day at a time, you can do it. I want to be at that party, wherever it is, although the boat sounds damn good!

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slguy says on Apr 11, 2008, 19:57:

scotty says on Friday April 11th, 2008 18:23:

slguy i was in the Navy for 4 years, i was on an aircraft carrier...but i still like land better.

betcha didn't have any pole dancers on that carrier! ;)

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 12, 2008, 23:53:

did you say pole dancers? ahh no i do not recall any pole dancers on the ship i was on. i could get into pole dancers.

Im trying to be as positive as possible. I went to see some buddies of mine today, we hung out awhile, i met another guy there that had throat cancer years ago he had a terrible time with radiation, but he lived.

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on Apr 13, 2008, 20:45:

hey scotty, how you doing?

Is it radiation or chemo that you will have? Or both? My mom's doing radiation right now and she says it's not so bad...but she might be holding out a little bit on the truth.

She had a tough time with the chemo though, but she made it through, as you will too.

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Man Tequila says on Apr 13, 2008, 21:40:

Glad to hear Scotty's trying to stay positive, and that Pod's mom is holding up.

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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scotty says on Apr 13, 2008, 22:55:

Hi Pod, I will have chemo and radiation at the same time. i will have each 5 days a week for 38 treatments.
i hear the chemo is much worse than the radiation, but the radiation is also bad news.

your mom has cancer? how is she holding up?

MT i just take it one day at a time, what ever they tell me to do i just do it, i am getting so used to getting poked with needles and drinking chalky liquid, im almost amune to the pain, they say do this or do that and i just do it and get it over with and move on to the next thing.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 13, 2008, 23:16:

scotty, what happens if you drink alot, while takin these treatments?
No one ever asked that Q, or at least no one ever gives the answer...

When are you starting the treatments?
This week?

No, no... don't be drinking shit.... that's our job... we are gonna ( I am gonna) have a few drinks on your behalf while you are recoverin!

5 days a week for 38 treatments.
so, come about...the middle of June.... this is all over ...
and, I have to start 'splainin to my colombianita why I'm goin_back to Bogota without her ... lol

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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podborski says on Apr 14, 2008, 20:51:

I was just in the midle of replying to you scotty when a conman walked into my place here and ripped me off for a hundred bucks...damn I'm stupid! But I won't do that again...

Anyway, my mom just finished 6 treatments of chemo, and is now doing radiation everyday for 6 weeks.

The chemo was tough on her, she said she couldn't taste her food, and of course she lost her hair.

But the radiation seems to be not so bad, unless she's downplaying it so that I won't worry.

She said she is going out for walks, and can taste food again. She's hanging out with her friends going shopping and to the movies etc.

I think you are right to do whatever the docs say...I have great faith in them. My mom didn't take some of the painkillers and things they gave her, so I suspect that's why she had a hard time with the chemo.

So take whatever they tell you to take. I'm sure they prescribe things for a reason.

wishing you all the best.

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goin_south says on Apr 14, 2008, 22:23:

Hey, Scotty.... here's a video that will help get yer mind off all that garbage with the candidates:



Well... whadya think?

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 14, 2008, 22:31:

GS, i dont know about drinking and treatments, never thought about that, good question.
they havent scheduled my treatments yet. I go in tomorrow Tuesday for surgery for my abdominal hernia and also to insert a feeding tube into my small intestines.
they will probably start chemo and radiation ina couple of weeks???
yea, probably wrap it all up in mid June, i hope!

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 14, 2008, 22:34:

U .........
didn't...........
even...................
mention......................
that video.......................

;-((((

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 14, 2008, 22:36:

Pod , man im glad your mom is doing better, that is great news.
yes i have heard the same from others that you cant taste food, you experience nausea, hair loss.
i am not looking forward to this stuff, but again its one day at a time.
thanks Pod! i will keep you guys posted.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 14, 2008, 22:38:

funny GS!

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 26, 2008, 11:47:

nice video GS

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 26, 2008, 12:07:

ok, i am finally back, weak and tired but never the less back at home sitting in my chair at my computer...whew...what a week of hell it has been.
lets see last we talked i was about to get surgery to install a feeding tube device and get my hernia repaired..right? then all hell broke loose and i havent been around for about 10 or 12 days.

ok, got the surgery and had a feeding tube put into my intestines and had a abs hernia fixed. went home and the next day i was back in the ER because i couldnt urinate, they installed a catheter and sent me home again.

the next day i had an appointemt to tour the cancer clinic while there i got sick and couldnt even walk, they took me back to the ER by abulance, after several terrible hours in the ER i was pronounced with staff infection and admitted to the hospital.

i spent 7 days in a room being feed through a tube and recieving anti biotics, last Tuesday night they sent me home even though the infection is still there they sent me packing. home.

they brought me home in the middle of the night and dummped me into a chair, hooked up my feeding tube to a liquid pump and they all left. i thought they had brought me home to die.

i have been home not more than 2 days when my feeding tube clogged up and once again i was taken to the ER where they unplugged the tube and sent me home.

the last few days have been hecctic and hard on me, i am weak and very tired, and trying to take care of myself as i live alone and there is no one to help me with everyday living .

the feeding continues 24/7 even while i sleep.

i have received many many emails and calls from friends and PBH memebers and other chat site members. I want to thank you all for your emails and encouragement.

If anyone has any questions, comments, suggestions please feel free to post them and i will respond.

thank you all and i ask that you continue to pray for me and support me in these tough times in my life.

thanks,
Scotty

Get Rhythm, when you got the blues. Johnny Cash

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webmanco says on Apr 26, 2008, 12:22:

I am glad to read that you are back home, and doing fine. It was funny that you went and visit some colombians at the zoo. :-), so you are a living proof that Colombians over there are different than Colombians here.

Keep it up.

No hay extremo cierto o verdadero, porque los extremos opacan, enruedan, (lavan cerebros) verdades. Yotas

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podborski says on Apr 26, 2008, 12:26:

hey Scotty, sounds like if you had any luck at all right now it would be bad.

If I could get away from BsAs right now I'd come visit you, but I'm stuck here for the time being.

Sounds to me like you could sure use some home care. Does the hospital not provide anything like that? Even a visit for a few hours a day would help. My mom had that service while she was recovering from surgery.

If not, guess you are just stuck with us PBHrs. I haven't had time to be on here much lately, but I'll try to come by more often to see your updates.

I guess your immune system is weak right now (from the chemo?). probably best if you do stay home and just try to rest, recover, build up strength.

I'm really sorry to hear you are having a tought time of it. But I also have faith that you are going to stick it out and beat this thing. We can't be with you physically but we are all thinking about you.

My mom is recovering now, after she went through some really rough times. But she told me recently that she feels 100% better now, she just tires easily. She still gets radiation every day (about 4 weeks left of that). But so far there are no serious side effects.

Well, really hope you get better soon, keep us updated.

Take care.

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Portena says on Apr 26, 2008, 13:01:

What an ordeal, Scotty! It says a lot about your tenacity that you are up and about and able to send us an update!

It does sound like you could use some home health care, but given some of the gaps in the US healthcare system maybe that's not available to you. Cat Girl, at least, seems to know what kinds of options might be available.

I will keep you in my thoughts and prayers!

Prophesy is a good line of business, but it is full of risks ~ Mark Twain

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aztec says on Apr 26, 2008, 13:11:

It seems incredible you are having to endure this alone and without any help! The task ahead is difficult enough and almost impossible for a human to handle.

Surely there must be family close or maybe some friends who would stay with you. A local church or other community group might be helpful if they only knew of your plight.

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darkangel305 says on Apr 26, 2008, 13:40:

be strong!!
i like your atitude
and i will pray for you

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MaFe says on Apr 26, 2008, 14:37:

Scotty, stay strong and keep fighting. I don't know much about you, but I can see you are a fighter!
I am praying for you everyday, and have asked my parents to request prayer in their church for you.

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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CatGirl says on Apr 26, 2008, 18:07:

Sweetie - you need to ask your Physician to write you an order for Home Health Nursing. Many of those things you described could have been taken care of at home instead of going back to the hospital. You want to minimize as much time as possible in the hospital....too many nasty microbial bugs that can kill ya. I am sure you are eligible for this Amor

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on Apr 26, 2008, 20:01:

Hi all, thank you for reading my update, and thanks for the support and suggestions.
i will try to answer all questions.

1. web, yeah what a trip im in the phoenix zoo and come walking into colombia.
2. yeah pod, its been a very difficult past three weeks. I was told i would have home care and home care never arrived. i have been alone doing it all myself.I have a weak immune from all the anti biotics.if you can ever get away, you are absolutely welcome to visit me anytime.
3.thanks portena
4.aztec i have had a terrible time, i am alone. i have few friends in this area and my sister who lives here rarley comes by. im on my own
5.Frank i pray regularly and two ladies came by today and prayed for me. please pray for me.
6. catgirl- my doctor and the social worker at the hospital said i would have a helper, no one ever showed up, and i cant reach my doctor. im stuck here alone.
7. thanks every one

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 26, 2008, 21:21:

scotty, all of us have telephones, creo. need me, or one of us to battle the bureacracy long distance? i love cutting stupidassed red tape - especially in health care issues for friends!

just run up the skull/crossbones, and i'm burning up phone lines for ya!

Before you throw me out, make sure I pay my bar tab

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christobeldawg says on Apr 26, 2008, 22:06:

What stood out to me was that you are there alone. I wish somebody who cares about you were there with you. You are a fighter. Hang in there friend.

traveling hopefully is always better than arriving

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podborski says on Apr 26, 2008, 22:07:

hiya scotty. well it's late here, and I'm on the night shift, about to crash in one of the chairs at reception I think...I'm on my own as well, (but sure as hell not going through what you are).

I look out my window and I see people who have to sleep in the park. Sometimes when I walk by them I notice them glare at me, they mumble something, not friendly, and I understand why they feel that way. Life isn't very fair.

But life is also damn interesting, worth fighting for.

How are you spending your time? Are you able to watch some movies? Any good ones I should see?

Well, I better get some sleep while I can. Hope you can give us another update tomorow. Hang in there, things will turn around for you soon.

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goin_south says on Apr 26, 2008, 22:09:

...and, I'm counting my blessings, as I read this.
Give it hell, scotty!
Hey, scotty... go read that post that I wrote in, that kat1 wrote to see what's happening with the new colombians in my home/family. It's alllll ... goood....will give you something to smile about.

Let me count again.

ciao, scotty. I'm looking for you number...

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 26, 2008, 23:24:

hi ya guys G_S, pod, dawg, slguy, mafe and everyone else. im just hanging in there doing it one day at a time. trying to stay alive and get some radiation started so i can live.



i want to also take this time to say to all that i may have offended or hurt at anytime in the past i appologize, and any who ever hurt me in anyway i forgive you.

i just want to live and be friends with all peoples.

you all take care and again feel free to post and i will respond or you can also email me any time.

Scotty (john)

Get Rhythm, when you got the blues. Johnny Cash

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MaFe says on Apr 26, 2008, 23:39:

Scotty, please don't be sad...I know this is very hard...but you have to stay postive...

It is so noble of you to apologize to anyone you might have offended...please don't feel bad. You seem like such a good guy....stay strong chiquito.....

I told you that I asked my mom to pray for you with her church, at least I can have them pray for John...not Scotty...

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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CatGirl says on Apr 26, 2008, 23:49:

John

You Never Offended me. I enjoyed our political bantor...keep it up and please get home health

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on Apr 27, 2008, 02:46:

thanks MaFe and Catgirl and everyone. I just wanted everyone to know that i do have a bad habit about becoming to passionate about my politics sometimes and come across pushy and i do not mean to be like that. its funny right now in my life the things that i considered important all of the sudden do not seem important at all. who would have ever thought?

MaFe im trying not to be sad, i try to convince myself everyday to be positive and cheer up, just hard to do when a tube is coming out of your abs and it is your source of life. just three weeks ago i was woffing down all the good foods like spagetti or a fresh salad or a taco or whatever now i live on canned liquid formula. yuk!
Ma Fe thanks for the prayers, greatly appreciated!

and yes anyone who is offering prayers please make them to John in Arizona. infact if you folks would rather call me John than Scotty please be my guest after all it is my real name.

Catgirl you are fun to debate, you make your points without anger or name calling that classy.

anymore questions or advice im here to respond

thanks all, john

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 27, 2008, 05:59:

well of all times for this to happen. the compressor in my fridge went out...geez. but i have bigger problems i am experiencing bloating in my tummy area, not good.
i havent slept all night its now 6AM, i have got to get a little rest.

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on Apr 27, 2008, 06:21:

Take care John.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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webmanco says on Apr 27, 2008, 06:23:

John sleep some and comeback to this corner in PBH. You are right about La Gata.

No hay extremo cierto o verdadero, porque los extremos opacan, enruedan, (lavan cerebros) verdades. Yotas

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podborski says on Apr 27, 2008, 07:05:

John you don't have to apologize to anyone (I don't think?) jaja, I have been a lot more obnoxious to some people than you ever were.

Better to be passionate about things anyway, IMHO. I don't know if I trust anyone who is calm and rational ALL the time...

It's so true though, isn't it, that when times get tough, it puts things into perspective.

I can recall several times when I thought things were difficult, because of some minor annoyance, and then I would hear from a friend in colombia that their brother/cousin/close friend had been murdered/robbed or something like that, and I realized just how trivial my own problems were.

I have to run, but I'll find time to email you a little later today, take care.

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MaFe says on Apr 27, 2008, 08:50:

podborski says on Sunday April 27th, 2008 7:05:

Better to be passionate about things anyway, IMHO. I don't know if I trust anyone who is calm and rational ALL the time...

Good words to live by!


scotty says on Sunday April 27th, 2008 5:59:

well of all times for this to happen. the compressor in my fridge went out...geez. but i have bigger problems i am experiencing bloating in my tummy area, not good.
i havent slept all night its now 6AM, i have got to get a little rest.


I recently went through a period where everything in my life crumbled before my eyes...NOTHING like what you are experiencing now..
I remember just when I thought I couldn't handle another obstacle my mother said to me; "Even though life appears to be at the edge, beyond difficult- you have to stay strong because after all the ugliness you experienced- you will be showered with endless blessings, and happiness, life will get more beautiful as the days go by."

I didn't translate it word for word, sounded a lot prettier and soothing coming out of my mother's lips.

The point is have faith, because sometimes good people go through ugliness and when it's over you will live on with beauty in your life, happiness, and more blessings!

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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CatGirl says on Apr 27, 2008, 10:06:

John, just know we have been thinking about you since you took your break and the wealthy hearted GS has made multiple positive references towards support of your recovery throughout PBH in his comments (he is a good guy).

So...we are here for you ;)

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on Apr 27, 2008, 12:33:

that duck is a-ok dude!

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 27, 2008, 21:43:

thanks everyone - catgirl, mafe, podborski, kalder, web, alma, G_S, slguy,Frank, dark, dawg, man and all the rest of you.

i think G_S sent me a PM earlier today but i wasnt sure, i was so wasted on these meds they have me on i dont even recall if i answered him or not? G_S if that was you send me another PM.

all right you guys and gals im gonna make an effort to get some sleep tonight last night i only got 3 hours.

talk to ya all later,
Scotty (john)

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 27, 2008, 21:53:

slguy, please by all means if you have any ideas, any connections, and thing you can offer to get this process moving to help me, please by all means do it, you have my gratitude. do you want to Pm me with what you have in mind?

thanks
Scotty ( john)

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on Apr 27, 2008, 21:55:

night John, hope you get some rest tonight.

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houstongal (Trustee board) says on Apr 27, 2008, 21:59:

John - May you have a good night's sleep and a beautiful morning (with a PM from slguy offering his assistance to making this nightmare end!). Sweet dreams!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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slguy says on Apr 28, 2008, 06:31:

somebody help me out, please? i couldn't find the post w/ scotty's email, and pbh PM has sent me two dubious messages in 6 days. don't wanna add solving a computer virus to scotty's "to do" list ;) - but i do wanna contact him today...

Before you throw me out, make sure I pay my bar tab

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CatGirl says on Apr 28, 2008, 10:15:

I completely understand after what happened to me!
I tried looking twice for you but could not find the email address...I'm sorry. ;(

Love and Time: the only two things that cannot be bought, but only spent

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slguy says on Apr 28, 2008, 12:33:

the dawg came thru....and i've been working phones. thanks, all!

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 28, 2008, 15:06:

up in the sky...its a bird!...its a plane!...its slguy!

well everyone, as you know when i left the hospital i was told that organizations would be contacting me the very next day to set up home care services. well no one ever called or came by and here i sat trying to care for myself.

then out of nowhere comes slguy, he gets on the phones and all the sudden organizations are calling me and appologizing and setting up appointments to interview me. nothiong will really happen probably until next week, but now at least they know im here and they are calling and interviewing and filling out the forms.

thanks everyone and special thanks to slguy for the phone work.

take care all,
scotty

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on Apr 28, 2008, 15:11:

Slguy is a hero! Yippee! Glad to hear he was able to help you John! Hope they get some help to your home soon! But at least there's hope.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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slguy says on Apr 28, 2008, 15:51:

hell, it was a few calls.....i've worked harder before for a LOT less.

you know where to find me, amigo. and i'll be checking up on you.

Before you throw me out, make sure I pay my bar tab

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houstongal (Trustee board) says on Apr 28, 2008, 16:07:

slguy - you must have a gruff pirate voice that scares the dickens out of these people! good job!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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slguy says on Apr 28, 2008, 16:21:

nah, hg. i've got the semi-southern, dumb bunnie twang goin' on.

honestly? it was a privilege, in several ways besides the obvious one. w/ only one exception, all 8-10 people i spoke with, after i explained the goal, really WANTED to help.

refreshing, ya know? :-)

Before you throw me out, make sure I pay my bar tab

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slguy says on Apr 28, 2008, 16:26:

even the insurance companies' CSRs! amazing, no? ;)

Before you throw me out, make sure I pay my bar tab

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houstongal (Trustee board) says on Apr 28, 2008, 16:36:

I think the fact that a friend would make the call goes a long way as well. Then they all want to get on the bandwagon to help out. Or maybe it was that empathic twang....;-)

The Wall Street Journal today had an interesting article today about non-profit hospitals demanding payment up front for certain customers. The article was specifically on Houston's renowned cancer hospital - M.D. Anderson. Very disappointing to read, especially knowing these are folks that are sick with cancer like Scotty.

There are actually people out there who will call on your behalf and work to get the amount lowered (and are paid a third of reduction).

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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CatGirl says on Apr 28, 2008, 16:37:

Slygy: You are a Hero ;)))

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on Apr 28, 2008, 17:37:

after i beat this thing im getting a cape for slguy to wear.

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 28, 2008, 17:46:

jjaajjaa....an aguila, served by one of those gals, will do nicely - at your party, of course.;)

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 28, 2008, 18:15:

im going to beat this damn thing, im getting on a plane and i am going to drink beer with all you guys in Bogota or Cali or both.

you know i havent swallowed actual food in over 3 weeks now. i dreamed about food last night and woke up with a grawling feeling for a...get this.... whats the very first food i thought of when hunger hit??? any guesses?
a El Correl Cheeseburger, with fries and and a vanilla shake located at Chipi mall. when i get back to Colombia after i beat this monster i am heading straight for El Correl.

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 28, 2008, 18:18:

we'll meet you there!

Before you throw me out, make sure I pay my bar tab

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travelingirl says on Apr 28, 2008, 18:21:

Aw, you poor thing, dreaming about food! I hope things are getting better for you, Scotty.

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goin_south says on Apr 28, 2008, 18:53:

I'm raising money for scotty... selling his telephone number to Caleñas...triple priced por las gringas....

Scotty,... whatcha think? Ads in el Tiempoooooo???

:-))

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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christobeldawg says on Apr 28, 2008, 19:42:

That was really nice of you slguy. Scotty I am with you for the El Corral burgers.

traveling hopefully is always better than arriving

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scotty says on Apr 28, 2008, 19:56:

slguy kicks butt!
food ...the first week on this feeding tube i really didnt think about food at all..however the last 48 hours i am going crazy for food and all i kep seeing is the El Correl sign at Chipi mall in Cali.
G_S you wackey guy!
thanks dawg..im gonna beat this thing and im going to Colombia

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on Apr 28, 2008, 20:21:

And we'll all join you in Colombia John!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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podborski says on Apr 28, 2008, 21:06:

Hey scotty! (I can't get used to John)

Glad to see you are getting some help (I have a really nice bottle of wine for slguy either here or on a nice boat somewhere...) and even more glad to hear you sound like your old fighting self again!

But i almost wished you hadn't mentioned el corral...damn I can't get a decent burger in this town nohow. I have to make my own..and I'm not much of a cook.

I have a confession, I actually like the corral burger with pineapple on it...

So that's what I'm going to have when we all meet.

And then we'll drink slguy's wine.

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billyb says on Apr 28, 2008, 21:35:

Scotty, hurry up and get well, the wackos upstairs are starting to run wild :))

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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slguy says on Apr 28, 2008, 22:10:

"(I can't get used to John)"

prolly some of those folks thought i was a wingnut today, when i kept referring to "scotty, umm..john". jajaja

Before you throw me out, make sure I pay my bar tab

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CatGirl says on Apr 28, 2008, 22:10:

John

Enjoy the Home Health Nurses ;)))

Maybe you will be able to make a request for specific nurses jeje....When I was a supervisor in HH - I tried to send nurses out that the customers asked for.

You like gals in uniform? Make sure their shift is about the time for your "sponge bath" ;))

Love and Time: the only two things that cannot be bought, but only spent

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CatGirl says on Apr 28, 2008, 22:13:

Oh! and don't let 'em forget that back rub and foot massage ;) (nurses tend to be hands on types)

Hey! Enjoy EVERYTHING!!!

Time for Kitty's milkbath purr

Love and Time: the only two things that cannot be bought, but only spent

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slguy says on Apr 28, 2008, 22:19:

"But i almost wished you hadn't mentioned el corral...damn I can't get a decent burger in this town nohow. I have to make my own..and I'm not much of a cook."

what a load. got a friggin' chef on the payroll, but can't get a decent burger? seems to me you're punchin' below your weight now...;)

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 28, 2008, 23:03:

thats ok pod, i answer to anything, scotty, john, hey you, whatever.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 28, 2008, 23:05:

knucklehead???

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 28, 2008, 23:05:

Pod what a shame USA the land that discovered hamburgers cant make a decent burger, we have to go all the way to El Correl to have a taste burger. whats that all about?

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 28, 2008, 23:06:

hey there billyb how ya doing guy? good to hear from you. how are things in Gods country (northern Calif)

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 28, 2008, 23:06:

scotty, my daughter made her own version of 'Jambalaya' today, for Los Colombianos.
(jaja.. I wish there was some 'leftovers'!)

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 28, 2008, 23:08:

cat- yea thats just what i need a latin nurse that likes to give back rubs..yeepee!

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 28, 2008, 23:08:

(hope you don't mind the moniker 'knucklehead', because... I plan to give ya a couple 'noogie's' in Bogota! jajaja!)

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 28, 2008, 23:09:

yes, G_S even knucklehead.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 28, 2008, 23:09:

I think a latin nurse that likes to give 'FRONT RUBS' would help bring ya back to life... damn! we don't particularly need the relaxation stuff, now do ya???

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on Apr 28, 2008, 23:10:

oh, G_S by the way thanks for the call, always good talkin to ya. and congradulation!

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 28, 2008, 23:14:

ok PBHer's im gonna hit the recliner ( i sleep in a recliner cant lay down in a bed) so im gonna hit the recliner. tomorrow and wednesday are big days for me.
tomorrow i meet with my surgeon, he will check out the tube, the infection, and his surgery work and will decide if i can move on to radiation treatments. also slguy gave his assistant a ear full about my situation and i want to see the results tomorrow.

wed. i see the oncologist and he will set up a radiation program for me, so both these coming days are important to me.
night all!

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on Apr 28, 2008, 23:14:

Un Mil Gracias, John!
And, it's great to hear the STRENGTH EN SU VOZ!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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goin_south says on Apr 28, 2008, 23:15:

(Where's Lisa Z? I wonder if I'm still confusing her???)
with mi malo ingles...
It's really an ADVANCED FORMULA... by which LA_CAMpiña and I write... jaja

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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slguy says on Apr 28, 2008, 23:16:

ya know..pod's right! you DO sound better, scotty! keep it up!

Before you throw me out, make sure I pay my bar tab

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christobeldawg says on Apr 28, 2008, 23:24:

go scotty go, kick its ass. I like the collective spirit here, within the community of us pbh long timers.
different politics, no blem, different opinions on many other things, no blem.
We old timers need to hang, and at this point, we are all totally focued on the good health and well being of our much loved Scotty.

traveling hopefully is always better than arriving

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scotty says on Apr 28, 2008, 23:56:

never mind, the problem has been solved.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 29, 2008, 06:24:

dawg, what part did you play in this? i heard your name mentioned several times.

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 29, 2008, 06:43:

dawg sent me your email yesterday, when i couldn't find it, scotty. and other invaluable support...jaja

Before you throw me out, make sure I pay my bar tab

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MaFe says on Apr 29, 2008, 07:58:

Good Luck today, let us know how the appointment went!

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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scotty says on Apr 29, 2008, 09:14:

i will give you a doctor report later. im excited to go see this doc. one thing last night one of my stitches started leaking so i'd like to find out what he is going to do about that.

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on Apr 29, 2008, 13:29:

good luck today scotty!

I probably won't be around 'til later. I have a full house tonight, and some friends arriving from Canada, and some other really good news. I'll email those that I have email addresses for...slguy, not sure if I have yours? Can you send me a pm? And scotty too...and anyone else who wants to...

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scotty says on Apr 29, 2008, 14:20:

i just got back from the surgeons office, do you want the details , everything that happened and was said, or just the basic overview?

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 29, 2008, 14:26:

as much as you have energy for!

Before you throw me out, make sure I pay my bar tab

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aztec says on Apr 29, 2008, 15:50:

CatGirl, You are the cat's meow!

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scotty says on Apr 29, 2008, 16:05:

Slguy, first let me say this. You know the situation here its crazy, would you agree? Anyway, slguy i made a few calls of my own today and here is what i was told.

1. these insurance companys are all intertwined, they each handle different parts of the medical field.
2. you are right the part that handles the Home Health Aid is the one you told me did
3. I called that depsrtment and was told this... the surgeon and the Oncologist are not the ones who would request Home Health Aid for me, it would be my Primary Doctor.
4. So the insurance company said i would probably qualify if the Primary would just request it.
5. So here is what i did just a few minutes ago...i called and left a message for my primary doctor and I also sent him a fax giving him the details and asking him to request Aid.
6. I will wait until mid day tomorrow and if i have not heard from my Primary doctor i will call him again and again and again, until i get some help.
thank you,
scotty

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 29, 2008, 16:14:

im tired...i will give details later. this trip to the doctor wore me out.
later

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 29, 2008, 17:06:

as i said on the phone scotty - now they have a pissed-off pirate to deal with.

tomorrow's another day. get some rest...i'll be doing some heavy lifting manana....polite, but w/ the gloves off ...;)

Before you throw me out, make sure I pay my bar tab

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podborski says on Apr 29, 2008, 17:29:

hiya scotty, hope you get some rest. Things will look better in the morning.

Slguy, I have to say, you're a hell of a guy to help scotty out like this. Wish I had time to do something. But my hands are really full at the moment.

ah a taxi just pulled up with my pals from canada got to run

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slguy says on Apr 29, 2008, 17:50:

thanks for the kind words, pod - but i'm certain that i'm just the guy w/ some time available. lots of folks here would do the same, absent other commitments..

Before you throw me out, make sure I pay my bar tab

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slguy says on Apr 29, 2008, 17:52:

but don't get your hopes up - i''ll be looking for that bottle of wine! ;)

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 29, 2008, 18:10:

I met with the surgeon today. I informed him that the stitches he put in me were seeping a fluid. he laid me on the table and pressed down on the stitches. a huge amount of fluid came out of my abdominal area, maybe a cup full. he kept saying ahhh ...this is good. he cleaned it up, then cleaned the wound, put a bandage on it and told me to go home.
he told me it was not infection, yet i have smelled infection in my lifetime and it was infection. also he filled a precription for more liquid antibiotics for me, why do that if there is no infection??
i then talked to his asistant about getting some home health aid, she told me it was the responsibility of my primary doctor to request it through my insurance company.
first thing i did when i came home was call and leave a message and also I faxed my primary doctor requestinjg home health aid.
the stitches continue to seep slightly as we talk, I have changed two bandages in 6 hours time. However, a friend of mine that is a nurse said it is common to have drainage and just to let it drain and keep changing bandages as needed.
tomorrow is another day, hopefully my primary doctor will get my fax and contact me but im not holding my breath.
also tomorrow i have an appointment with my Oncologist and i will bring all this uop to his attention.
wish me luck everyone, this is pathetic that i must endure this madness.
john

Get Rhythm, when you got the blues. Johnny Cash

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MaFe says on Apr 29, 2008, 18:22:

Scotty..thanks for the update. It sucks that your primary's office is just not responding! So sorry. Keep trying!

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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houstongal (Trustee board) says on Apr 29, 2008, 19:26:

Ugh John! What a nightmare. I've always heard that people need advocates helping them through the maze. And you've got that with slguy (and you're right....I would make those calls myself too, but I'm leaving town on Friday for a month so I could be of little help!).

Thank goodness he has the time and energy to call for you. Thus please have him help you make the calls and you conserve your energy and rest. I wish my Mom and niece weren't on a plane to Washington DC right now otherwise I would ask about this fluid you're experiencing. If you reach your primary care physician, ASK him about the fluid! OK?

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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slguy says on Apr 29, 2008, 19:53:

here's the deal..yesterday when i talked to the surgeon's gal, i got "mr.pirate, i promise john won't leave here tomorrow w/out home health care, don't worry!"

today, they blew off scotty, and when i called this gal inquiring about the events, i got blown off under the privacy guise - which was non-existent yesterday. also- after this fluid was discoverd in the abdomen.

i'm beginning to smell a CYAing rat in doctor's scrubs. i just cant fathom another reason for refusing to authorize home health care especially when the insurance co. is standing by, ready to expedite the paperwork...it isn't like the surgeon is paying the bill -yet. ;)

Before you throw me out, make sure I pay my bar tab

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houstongal (Trustee board) says on Apr 29, 2008, 20:20:

As an auditor, I understand that there's probably a procedure that they need to follow and it's very unfortunate that no one bothered to say - oh, your primary care physician needs to approve that! The insurance company has procedures....they need to be followed. Sorry, but I can understand their position.

Let's get the primary doc to move on this. And if John actually talks to the guy, ask him about the fluid.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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slguy says on Apr 29, 2008, 21:11:

the insurance company tells me that whoever installed the tube needs to ok the home care. that would be today's bozo,hg

Before you throw me out, make sure I pay my bar tab

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scotty says on Apr 29, 2008, 21:13:

slguy and others, well it does appear that they are aware of me and my situation. for some reason nothing is moving or at least i dont see anything moving.

heres what has happened so far, in addition to all of slguys phone calls this has happened.

1.i have made contact with an insurance person Lidia and she seems to be on the case, maybe???
2.i have called and faxed my Primary doctor but have not heard back from them yet.
3.the surgeon is aware of my situation
4.tomorrow i meet with the Oncologist and i will make him aware of all that has occurred
5.soooo.. everyone that needs to know about this knows about it, now we will see if anything comes of any of this.
in the meantime my stiches seep(less than before), i still have no home nurse and i still have no home aid. im carrying the whole load myself.
i hope to hear something positive from the Oncologist tomorrow.
i will give you an update manana.
scotty (john)

Get Rhythm, when you got the blues. Johnny Cash

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christobeldawg says on Apr 29, 2008, 21:15:

hey, I know most of us aren't all that religious around here, I mean, look at us, but why don't we all, along with the proactive steps that Slguy, and others, are actually doing, why don't we all pray every day for Scotty's recovery?

traveling hopefully is always better than arriving

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scotty says on Apr 29, 2008, 21:18:

I would greatly appreciate prayer. thanks dawg.

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on Apr 29, 2008, 21:18:

the primary doc is equally unimpressive.

"well, we're seeing john on friday anyway..." (yesterday i was told this)

"ummmm..but that's 5 days away, ma'am."

"well, it takes a week to start seeing them..."

"so, your idea is - wait 5 days to begin a weeklong waiting process, when my friend needs help now?''

silence.

Before you throw me out, make sure I pay my bar tab

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christobeldawg says on Apr 29, 2008, 21:22:

Ok, you bunch of politically correct new age freaks, come on then, at least envision healing, envision having a cool one, and having some laughs, a few years from now, with our boy.

traveling hopefully is always better than arriving

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scotty says on Apr 29, 2008, 21:37:

slguy not only is the whole idea of the primary doctor and their slowwww method. get this...i meet with the Primay doc on friday at 10:30, even if he ok's a home health at that time nothing will happen because they close their office on Friday at noon. so that means they may send it off on Monday and then the insurance company will take 6 plus days to authorize it so even if he approves this and the insurance approves it all we are talking well into May, maybe the 11th or 12th or later before anything starts moving.
meanwhile i need assistance like yesterday.
its pathetic, i am so disappointed in my country and the whole system in general.
later guys i got to lay down.
john (scotty)

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 29, 2008, 21:44:

thanks dawg for helping slguy get things started

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on Apr 29, 2008, 21:47:

funny slguy, the insurance company told me today that the Primary Doctor handles that??? go figure? its all crazy, the left hand doesnt know what the right hand is doing.

Get Rhythm, when you got the blues. Johnny Cash

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christobeldawg says on Apr 29, 2008, 21:52:

that's me, the visionary, not so much into the actual heavy lifting. jaja
Scotty, at least know that I, and many many others, are praying for you to get better, the sooner the better.

traveling hopefully is always better than arriving

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slguy says on Apr 29, 2008, 21:53:

get some rest, friend. we''ll get this sorted out, i promise. i just haven't worked my way far enough up the food chain yet. tomorrow the climb gets serious. ;)

Before you throw me out, make sure I pay my bar tab

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houstongal (Trustee board) says on Apr 29, 2008, 22:24:

OMG you guys....this really sucks! You two have more patience than I do!

My vote is the primary doc is the one who makes the call. Sounds like insurance co and the surgeon's office concur on that. Now let's light a fire under the guy to get the darn paperwork completed pronto!

Slguy...you really are a saint!

John...keep us posted and good luck tomorrow with the oncologist!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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goin_south says on Apr 29, 2008, 22:35:

I salute all of you guys/gals... for the effort.
John.. I hope the voice continues to gain in strength.
Sounded like you could have taken on the green bay packers last night!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Apr 29, 2008, 22:36:

I think all of this bureaucracy is making slguy feisty and it's passing on to John! Go get 'em slguy!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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slguy says on Apr 30, 2008, 16:37:

yep. i'm feisty today. operating on the "squeeky wheel theory".

i can't swear to it, but i'm pretty confident that receiving one more call from the primary doc finishes the bureaucratic BS for home health care.. :--)

i gotta say - scotty's a trooper. he starts radiation monday - with a great attitude. i'm WAY proud of you, brother!

Before you throw me out, make sure I pay my bar tab

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houstongal (Trustee board) says on Apr 30, 2008, 18:55:

here's to slguy's feistiness! i do think it's rubbing off on John so keep it up!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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christobeldawg says on Apr 30, 2008, 19:26:

slguy was born for this. It's the non dramatic times that bring him down. jaja

traveling hopefully is always better than arriving

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Portena says on Apr 30, 2008, 20:27:

Hang in there, Scotty!

Prophesy is a good line of business, but it is full of risks ~ Mark Twain

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billyb says on May 1, 2008, 06:24:

hang in there Scotty, and good job slguy.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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Man Tequila says on May 1, 2008, 09:28:

Keep your chin up, John.
Though times seem tough, you're tougher.

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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kalder says on May 1, 2008, 12:25:

God bless you John.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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scotty says on May 1, 2008, 16:15:

thanks MT! thanks kalder!

im taking it one day at a time.

i am going to give an update on my situation Friday evening right here.

slguy, i nhave been trying to fax an authorization for the last 2 hours to demko/kimmi and it wont go through. i will try again later.

scotty (john)

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on May 1, 2008, 16:54:

don't sweat it, scotty. it's almost moot now, no? ;) whenever the spirit moves you is fine...

Before you throw me out, make sure I pay my bar tab

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christobeldawg says on May 1, 2008, 21:03:

and Scotty, LilaM is a very lovely person, and means what she says. I know her well, and she will be with us when we are chowing down at El Corral.

traveling hopefully is always better than arriving

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podborski says on May 1, 2008, 22:10:

way to go slguy, sounds like you managed to get things moving for scotty?

hang in there scotty!

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slguy says on May 1, 2008, 22:36:

who can tell, pod? sifting thru that crap is a meditation-inducing experience. ;)

but we seem to have broken the logjam, at least for now.

best of all - scotty sounded great this afternoon. :-)

Before you throw me out, make sure I pay my bar tab

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goin_south says on May 1, 2008, 23:02:

as well... tonight !

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on May 2, 2008, 00:55:

I swear.....the spirit of this PBH community has lit a fire in Scotty! You guys are great! John...don't ever stop talking to them!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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MaFe says on May 2, 2008, 06:47:

I feel so bad for you! I can't believe your primary's office...I hope when you meet with him you tell him how long this is taking and how you urgently need this care...good lord!

Good luck!
I found a prayer site;
http://www.precious-christian-dailydevotionals.com/cancer.html
One of the names of Our Mighty God is "Jehovah Rapha". The LORD God that heals us. Cancer roots dry at the command of our Great Lord. It's cells will stop spreading at the command of God. His Word will restore health to you. The bible further says this in the book of Philippians 2:9-10 "Therefore God has exalted Him to the highest place and gave Him the name that is above every name, that at the name of Jesus every knee should bow, in heaven and on earth and under the earth, and every tongue confess that Jesus Christ is Lord to the Glory of God the Father‿. This tells me whatever name the cancer has, be it prostrate, lung, breast, or cervical cancer, all will bow at the name of King Jesus. Healing can be attained by trusting in His Wonderful name.
For cancer patients

We pray for all those undertaking chemotherapy "chemo.‿ the use of medicines or drugs to treat disease, that the Lord will work out His perfect will in your situation and bring about healing. We ask that The Great Physician will heal all those that have undergone surgery and radiation therapy and that the fire of God will destroy all the cancer cells. We speak peace to all the patients and ask the healing virtue of Our Lord God will flow through every vein, tissue, cell, ligament and that healing will manifest. We believe that Gods desire is manifest in your life. His desire is written in 3 John 2 “Dear friend, I pray that you may enjoy good health and that all may go well with you, even as your soul is getting along‿. We speak peace to all the families having cancer patients. We speak uncommon provisions to cater for all the expenses needed to take care of the patients. We destroy every generational curses and declare that they will not continue but the blessings of God will overshadow each and every one of you. We are in agreement with Gods word in Jeremiah 30:17 “ But I will restore you to health and heal your wounds declares the LORD.‿ So be it, in Jesus Name.

http://www.prayer-for-cancer.com/

http://www.ewtn.com/Devotionals/novena/peregrine.htm

=============================

Novena To St. Peregrine -Patron Saint of Cancer Victims
Glorious wonder-worker, St. Peregrine, you answered the divine call with a ready spirit, and forsook all the comforts of a life of ease and all the empty honors of the world to dedicate yourself to God in the Order of His holy Mother.
You labored manfully for the salvation of souls. In union with Jesus crucified, you endured painful sufferings with such patience as to deserve to be healed miraculously of an incurable cancer in your leg by a touch of His divine hand.
Obtain for me the grace to answer every call of God and to fulfill His will in all the events of life. Enkindle in my heart a consuming zeal for the salvation of all men.
Deliver me from the infirmities that afflict my body (especially.....).
Obtain for me also a perfect resignation to the sufferings it may please God to send me, so that, imitating our crucified Savior and His sorrowful Mother, I may merit eternal glory in heaven.

St. Peregrine, pray for me and for all who invoke your aid.

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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MaFe says on May 2, 2008, 06:49:

http://www.beliefnet.com/gallery/cancerprayers.html?pgIndex=

A Healing Petition

May God heal me,
body and soul.
May my pain cease,
May my strength increase,
May my fears be released,
May blessings, love,
and joy surround me.
Amen.
--Naomi Levy

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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CatGirl says on May 2, 2008, 08:13:

John...wow there have been a lot of comments since I last checked.

I just wanted to check in and say hello, Amigo. When I get a chance I want to read what you have put for your MD visits.....as kitty is curious and open to help with any advise that may alleviate any anxiety or clarify questions that might simply delay or keep you from having to run to the Emergency room....sit for wasted hours only to be told simple things and to follow up with your MD later (you know what I mean ;). Ironically, I have experiencce in most of the areas you are dealing with.

Either way, really just checking in and letting you know my thoughts are with you. But the most important is to increase the "quality" of every moment in your days ;)) Sitting in the Emergency room or MD's office can be a waste. Also, are you OK with me asking you some questions (for clarifiaction) on PBH after reading your comments?
Let me know

Beso John

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 2, 2008, 11:30:

well its not the primary doctor, he has been left in the dark. its the surgeon, the suegeon is a wak job. i just got back fro the peimary he has not been sent any ionfo from the surgeon...nothing.
i will give an updat tonight.

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on May 2, 2008, 12:08:

sounds like Monkey Business, John.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on May 2, 2008, 13:59:

you are right GS its all wacky monkey biz.

hi elmo, well im hanging in there guy doin the best i can with the hand i have been delt. Im gingo but dont forget i am also 10 % Cherokee Native American.
as far as the Republicans i fear that i may no longer be a good spokesman for that party as i have lost belief in all of the candidates and both parties. I have looked at both parties and all the candidates very closely and i come to the conclusion that i do not favor any of them. Therefore i now label myself as an Independent .

later guys

Get Rhythm, when you got the blues. Johnny Cash

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billyb says on May 2, 2008, 19:29:

Hey John, just checking in to let you know I am thinking of you. As soon as you are better stop by your old hunting grounds in NorCal and we'll down a couple of bottles of vino.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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christobeldawg says on May 2, 2008, 19:48:

hopefully you guys will have as much fun, and as many mishaps, as those guys in the movie Sideways.

traveling hopefully is always better than arriving

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billyb says on May 2, 2008, 19:54:

jaja, that was a great movie, although I don't think Scotty and I will end up drinkng a $6,000 bottle of Cheval Blanc out of paper cups anytime soon.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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billyb says on May 2, 2008, 19:55:

Or crystal glasses for that matter, either.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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christobeldawg says on May 2, 2008, 20:24:

jaja. hey billyb, I think we have a chance of, even in a post such as this, getting in hot water with the pink panthers. I am sure, though, as usual, that will be painful for us, as I get really tired of sleeping the dawg house.

It may even good for Scotty's health to enjoy seeing us suffer.

traveling hopefully is always better than arriving

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billyb says on May 2, 2008, 20:33:

I hear ya Dawggie, but as you well know, I try to be as uncontreversial as possible.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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christobeldawg says on May 2, 2008, 20:49:

uhhuh, I have noticed that billyb. Colombians are fighters, as you are jaja, but don't discount us quiet Scot-Irish. We will fight about most anything, it's just in our genes. We love a good fight.
Scotty, I don't know your backgrouund, except for a trace of Cherokee, but I know that you are a fighter as well.

traveling hopefully is always better than arriving

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billyb says on May 2, 2008, 21:04:

Scots fighters? When my mom an dad got married a huge brawl broke out at their wedding and this was at the staid Club Colombia de Cali (all my uncles got their membership suspended for a year, but that is another story), well my dad's boss at the time was a scotsman who got nocked out by a bottle and sent to the hospital. When my dad went to visit him (thinking he was going to be fired), the scot said he hadn't had such a great time since he came to Cali, and really missed a good brawl now and then.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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christobeldawg says on May 2, 2008, 21:31:

jaja, that is pretty much normal here in upstate SC, maybe why I relate to Colombia so much. They seem to not have much problem with a good fight over next to nothing, in fact, like us, seem to find it a bit refreshing.
and the girls are a bit, how shall I say, emotional, here, as well, as they are there. Never underestimate the fun of makeup sex.
Thinking about it all almost wants me to go upstairs and throw a punch or two,
ahh, better than a sleeping pill

traveling hopefully is always better than arriving

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CatGirl says on May 2, 2008, 23:08:

Hey boys....nuthin like a late night hijack, jajaja.

Love and Time: the only two things that cannot be bought, but only spent

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goin_south says on May 2, 2008, 23:30:

hi-jacking is no crime, ... when you stay in the basement ;-)

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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CatGirl says on May 2, 2008, 23:32:

I am sure John will chuckle about it..;))

Love and Time: the only two things that cannot be bought, but only spent

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slguy says on May 2, 2008, 23:33:

hey! did someone say hijack?

Before you throw me out, make sure I pay my bar tab

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CatGirl says on May 2, 2008, 23:37:

jeje..you are up late Pirate?

Love and Time: the only two things that cannot be bought, but only spent

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goin_south says on May 2, 2008, 23:37:

Is there someone here named 'Jack'?
I don't think so.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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slguy says on May 2, 2008, 23:39:

shamefully late for an east coaster, cg!

Before you throw me out, make sure I pay my bar tab

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eywed says on May 3, 2008, 00:39:

SCORE boys , A buddy Just back from Medellin brought me a sixer of Pilsen. Scotty's one pilsen is now a little safer and waiting on him.

Ay Hombe!!!!!

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podborski says on May 3, 2008, 06:34:

good morning scotty!

How are you doing today? give us a quick update if you can.

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scotty says on May 3, 2008, 15:12:

hi every body, time for an update. i will do the best i can as i am feeling weak and kinda tired, plus the stupid hernia stitches are still leaking for 5 days now..

this was a very long and busy and crazy week, very stressful, not only for me but others to.

i dont know where to even begin so i will just jump in and start typing whatever comes to my mind.

all week slguy and myself have done verbal war with the insane medical/ insurance institutions. after numerous calls and faxes something finally began to move when a organization called me and sent out a nurse to access my situation. we signed papers and he said a nurse will be calling me on Monday the 5th.
the hospital had told me a nuse would be here way back in April , no one showed and no one called.
my surgeon has been absolutey terrible throughout this whole ordeal he has not commumicated with me, or my family, or my friends, he hasnt sent even one bit of paperwork to my primary doctor.
i saw my primaty doctor on friday and he knew nothing about any of this he had no info in my file from the surgeon.
i also met with my oncologist he also had no info from the surgeon. he has scheduled my radiation to begin this monday the 5th. he wont start chemo yet because of my leaking stitches.
its been very stressful but i am hoping that things are finally coming together.
the real problem which is he cancer has not been addressed yet hopefully that will change on Monday.
this surgery the doctor did is a mess, i pray the leaking will stop so i can get my chemo.
i want to thank slguy for hussling for me kicking these doctors in the butt.s
i want to thank all of you for your support and suggustions.
i plan to fight this thing, even if i have to keep changing leaky bandages for the next 2 months.
if you have any questions, because i know i was kinda brief in my update please feel free tlo ask. also any comments are welcome.
scotty - john

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 3, 2008, 18:20:

pow wow, i already know how screwed up the medical industry is, i have experienced it first hand. its to late for anything else i am already in the sytem, the surgery has been done the radiation and chemo start soon and we are off to the races!
to be honest with you pow wow i would rather not talk about it anymore, whats done is done and i am looking forward to some radiation to try and attack this cancer.
thank you for your information but it is time for me to move on there is no time left for alternatives.
thnak you

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 3, 2008, 18:39:

also wanted to thank all of you that have been sending me PM's and slguy and GS for the phone calls.
you PBHer's are a great bunch of people, thank you for all your support.

Get Rhythm, when you got the blues. Johnny Cash

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billyb says on May 3, 2008, 19:13:

Hey John, i am much better at making sarcastic (and yes, i know, stupid) comments, but just wanted you to know I am really pulling for you.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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CatGirl says on May 3, 2008, 20:21:

John..."leaking stitches" ...clarification - are these the "external" incision sites? Do you have steristrips (white tape) or staples?

"i pray the leaking will stop so i can get my chemo" - Again...not clear on what this has to do with the chemo :). Are you doing radiation and/or drug therapy? Only curious because many times people that are not in the medical field can get overwhelmed with information - especially when it is in medical terminology and it can feel like the are speaking a foreign language. In a way they are.

BillyB - Uhhhh Amor? what's up with the Avatar! Who is that? jajaja

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 3, 2008, 21:55:

hey billyb thanks for your support, its people like you that keep my spirts up. thanks!

thanks Mophus, i plan to fight this damn thing and i appreciate your support.

catgirl, at the same time the surgeon put the feeding tube in he also put in a mesh for a hernia i had in the same area.
the stitches are staples and right in the middle area is a leak of liquid, sometimes it doeant leak for hours then it starts and leaks all over the place. a hassle for me as i have to change and clean the area everytime this happens.

radiation starts monday, chemo starts in 2 weeks ( if the leaking has stopped by then).

Get Rhythm, when you got the blues. Johnny Cash

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billyb says on May 3, 2008, 22:07:

"BillyB - Uhhhh Amor? what's up with the Avatar! Who is that? jajaja"

jajja, Desi outed me out as a FARC supporter, so I decided to come clean. VIVA CASTRO, VIVA LA REVOLUTION!!!!!!!!!!!!

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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webmanco says on May 3, 2008, 22:13:

I knew it.

No hay extremo cierto o verdadero, porque los extremos opacan, enruedan, (lavan cerebros) verdades. Yotas

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billyb says on May 3, 2008, 22:52:

Hey, you PBHers are just too fokin sharp for us to endeavor to decieve ;)

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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travelingirl says on May 3, 2008, 23:03:

ah HA! I knew you were a fake-commie, hehe

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billyb says on May 3, 2008, 23:05:

Damn, you also TG? I guess I was just a fake all along :(

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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travelingirl says on May 3, 2008, 23:11:

I think you actually meant to use this as your avatar but posted the wrong one instead ;)
Photobucket

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billyb says on May 3, 2008, 23:33:

TG, please remove that offensive graphic, as there are some of us who worship the murderous and treacherous Che Guevara!!!!!!

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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christobeldawg says on May 3, 2008, 23:58:

obviously there are some of those still around. I bet they will vote for Hillary or Obama.

traveling hopefully is always better than arriving

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kalder says on May 4, 2008, 05:27:

You're always in our thoughts. I actually catch myself thinking, when I get up in the morning, "I wonder how Arizona John is doing."

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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CatGirl says on May 4, 2008, 09:47:

BB- Viva Castro, huh? OK...I'm lost, but soon I will come around, jejeje

Love and Time: the only two things that cannot be bought, but only spent

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goin_south says on May 4, 2008, 12:40:

I think mañana is a very important day, in the life of.... John, ... si?
May we all send him some 'good vibes'... today and in the morning, as he begins the course!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on May 4, 2008, 15:17:

I'm not a doctor, but I would imagine that he can't get the chemo until the leaking stops because he's prone to infection. The chemo would compromise his immune system even further, thus he needs to recover from his surgery first.

I'm sending good vibes from the Philippines. Let's hope his first radiation treatment goes well.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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scotty says on May 4, 2008, 16:00:

thank you MaFe for the prayers.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 4, 2008, 16:01:

houstangal i tried answering your Pm but it came back to me. also HG i checked out your blog...NICE!

Get Rhythm, when you got the blues. Johnny Cash

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greg says on May 4, 2008, 18:19:

Good Luck Scotty

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scotty says on May 4, 2008, 18:39:

Robert Jorge, where you been, havent heard from you in awhile?

G_S Duck thanks for the phone call, you cheer me up, you are the best Duck i have ever known

Houstangal, i checked out your blog, nice! and i saw your map of all the places you have travelled, whew! you are one international travelling lady.

greg thanks for the support

tomorrow is my first day of radiation, im a little nervouis but at the same time ready to attack this beast. take care all.

Get Rhythm, when you got the blues. Johnny Cash

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CatGirl says on May 4, 2008, 19:07:

HG "I would imagine that he can't get the chemo until the leaking stops because he's prone to infection. The chemo would compromise his immune system even further, thus he needs to recover from his surgery first."

Nope....Not the case (at least how you guessed). Leaking has nothing to do with that. The cancer needs to be attacked. Hope you enjoy the Philippines HG ;)))

John - Good to hear you are starting chemo!!!! The sooner the better.

Love and Time: the only two things that cannot be bought, but only spent

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christobeldawg says on May 4, 2008, 19:20:

Good luck with the chemo John. Take good care of yourself.

traveling hopefully is always better than arriving

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CatGirl says on May 4, 2008, 19:28:

John - one more tip? If you ever do end up admitted back into the hospital (and with all the praying you have on PBH - more than likely not) Make sure you ask who is the discharge planner or person that handles this is (sometimes a social worker). Be persistent to speak to them as soon as you hear that you will be discharged or have a guestimated discharge date. Ensure the orders and arrangements for Home health are set up BEFORE you leave. Even insist on getting the name and number of the supervisor too. If you have problems with that....tell them you will not leave the hospital until this is arranged.

Sorry - but with this system......once the hospital discharges and you wait for the arrangements you end up in the same situation again...delays galore. It's a great arrangement and bargaining tool, because they want that bed! If you refuse to leave...watch the ball roll! Waallah!

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 4, 2008, 20:45:

well the chemo hasnt even been scheduled yet. i meet with the Oncologist on may 12th to schedule chemo. its the Radiation that starts tomorrow.

wish me luck everyone!

talk to ya later,
john...scotty

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on May 4, 2008, 20:54:

hi scotty!

hang in there buddy!

Re: the chemo, I think HG has it right. After my mom's surgery they would not start chemo, no matter how badly she needed it, until the wounds had fully healed. Due to the risk of serious infection I believe.

Radiation: Nothing to fear there scotty. My mom has just finished week 6 of 7 and she feels great. No side effects (other than mild 'sunburn'), no serious illness, just really tired.

But do whatever you can to get the wounds healed so you can start chemo. Change those bandages every day.

My mom went to a naturopath(?) to get some help with that, and she thinks the creams etc he gave her helped. I'm all for it, even if it is only psychological.

Good luck, I'm pulling for you too.

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Portena says on May 4, 2008, 21:04:

Good luck, Scotty!

Prophesy is a good line of business, but it is full of risks ~ Mark Twain

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CatGirl says on May 4, 2008, 22:17:

John...oops my error - I meant to say Radiation. Either way, you are engaging in nuclear war on the problem ;)) That's great to hear things are progressing.

Love and Time: the only two things that cannot be bought, but only spent

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houstongal (Trustee board) says on May 5, 2008, 06:40:

John - AOL bounced messages last night (as I've been repeatedly told). I sent you a PM from my niece. Keep checking the blog...I will add to it as often as I can!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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aztec says on May 5, 2008, 08:11:

"It's a great arrangement and bargaining tool, because they want that bed! If you refuse to leave...watch the ball roll! Waallah!" CatGirl

Boy is that the truth. We discovered this quite by accident. My father had a stroke and the hospital ordered him dismissed after about a week. We refused.

All hell broke lose. All of a sudden there were no friendly faces to be found. In comes an important hospital administrator with some papers to sign. It seems our action had activated an appeal procedure requiring official response. The dynamics of patient doctor relationship was from that point in time changed.

This was not some local Podunk hospital but rather one of the best. Emory hospital in Atlanta.

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CatGirl says on May 5, 2008, 09:30:

Aztec - Yep....there are laws on how long you can detain people in the ER before moving them up to the hospital. Too long = fine. Another motive to get you out. There are usually several bodies in que waiting to take the bed to save the hospital from regulatory fines.

Love and Time: the only two things that cannot be bought, but only spent

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aztec says on May 5, 2008, 10:47:

He had already left the ER and was in a room. He was comotose.

First it was a shock and we had made no plans for some place to house him. Had no warning.

Until that time everything had appeared to be going well. Doctors and nurses were doing everything they could. It was clear we would need to make other plans if the situation continued on this level.

The hostility was palpable!. At that point even the nurses were afraid to speak to us.

As a former bureaucrat, it is clear to me they were following some protocol that limited further contact with the professional staff and that the administration was now in charge.

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CatGirl says on May 5, 2008, 11:52:

Aztec "He had already left the ER and was in a room" -

exactly....I was on the same page with you, just that I guarantee that while he was in that room there was a bottleneck of pt's waiting in the ER to be moved to a room. It is all about triage too. Sometimes they have to make horrific decisions. Example, they have to decide who is closer to death than others if there are no beds. That's when administration is forced to make the best decision possible at risk of making many people angry. They many times discharge pt's that should stay a little longer...but then there is this 15 year old boy with a gun shot wound to his head that just got out of surgery and needs a bed now.....so what do you do? I do not envy people that are in jobs where they have to look at lives as numbers.

Love and Time: the only two things that cannot be bought, but only spent

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aztec says on May 5, 2008, 13:01:

CatGirl, You are right of course. It would have helped us if they had taken a lltle time in preparing the family. Then maybe they did and we just did not "hear" them. When your father is dying it is easy to miss signals and I am sure it is painful for the professional staff as well.

After all, how do you walk into a room where there is a shocked and grieving family and tell them there is nothing else they can do and futhermore we expect you out of here by tomorrow. In retrospect, I realize it is not an easy task. In addition they have to do it every day. I would not want that job.

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scotty says on May 5, 2008, 16:20:

just got back from my first radiation treatment. the whole process took about 30 minutes. they also tatooed me in 4 locations 2 chect and on each side. i asked for an eagle or a nude woman but they just put these ugly little black dotes.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 5, 2008, 16:28:

I was told last Thursday that a in home health care nurse would be calling me and coming over on Monday the 5th (today) about 10AM. the nurse never called and never came over.

Get Rhythm, when you got the blues. Johnny Cash

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slguy says on May 5, 2008, 19:01:

i'm on it, 1st thing in the a.m. got a name/number?

Before you throw me out, make sure I pay my bar tab

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houstongal (Trustee board) says on May 5, 2008, 22:32:

Scotty, glad to hear your first treatment went well. And I figured slguy would be on that home health care nurse thing as soon as he heard she didn't show. :-)

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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webmanco says on May 5, 2008, 22:56:

i asked for an eagle or a nude woman

Good choices, first one freedom second one lack of freedom :-)

No hay extremo cierto o verdadero, porque los extremos opacan, enruedan, (lavan cerebros) verdades. Yotas

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scotty says on May 5, 2008, 23:42:

its ok slguy, i called the company that is supposed to furnish the nurse, they called her, and she called me. she will be here at 8:00 AM
thanks!

Get Rhythm, when you got the blues. Johnny Cash

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travelingirl says on May 6, 2008, 00:38:

Haha, I loved your eagle or nude woman comment, Scotty! Glad to hear your first day went okay.

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podborski says on May 6, 2008, 05:23:

good morning scotty!

Hope you are finally getting the help you need today. Glad to hear you sound in good spirits too.

So what is the plan for the radiation treatments? Every day I suppose for a number of weeks/months? Then will you do the chemo after? Or at the same time when you're all healed up?

Let us know if the nurse showed up or not!



.

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scotty says on May 6, 2008, 09:15:

Hi all,

good news...the nurse actually showed up! after 2 weeks of insanity, thanks to slguy persistance the nurse showed up. she is a nice person from Zimbabwe , married with 4 boys and is an excellent nurse. she took the vitals, ccleaned and changed my bandages, filled out some paers and told me she would check on me two days a week. whew! finally.

the radiation treatments have begun i will have radiation 5 days a week for 7 weeks. i am already feeling the effect of radiation, as i am unable to swallow even water now. everything my body recieves now must be trough my feeding tube, water, medeication and of course the liquid food, this is my life for the next 7 to 8 weeks.

my spirts are a little better as i am just so happy to have anurse checking on me and the real war against the real mionster cancer has begun
i am not sure when the chemo part begins i think maybe next Monday the 12th i will then get chemo and radiation everyday. i will get chemo, walk down the hall and recieve radiation on the same days, everyday for 7 weeks.

well the nurse just left, i need to get cleaned up and get ready for my radiation treatment in about 4 hours from now.

talk to you all later

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 6, 2008, 11:21:

Take care mate.

What are you doing to pass the time? Watching TV? Reading?

Did you ever get your hands on Season 6 of The Shield?

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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podborski says on May 6, 2008, 17:49:

Really glad you are getting some help scotty, way to go slguy.

I have a bottle of wine ready for you slguy (and one for scotty too). It's really great stuff, and has a nice story to go with it. Since I am finally able to relax for a bit, and I don't have much else to say, I'll bore you with the story.

The son of the owner of the bodega came by to taste these wines with some guests of mine. I sat in and heard the stories.

They own the highest producing vineyards in argentina, possibly the world (?) at about 8,000 feet.
They don't have phylloxera or many bugs so they can grow true organic wines. The main problem is ants, and to keep from using pesticides they employ ant hunters (seriously) who follow the ant trails at night with lanterns, to get to the colony, sometimes 2 km away, where they do their dirty work.

So at night from the house in the vineyards high up in the andes you can see lanterns bobbing up and down hills all night long.

I think I'd like to see that one day.

The original vines were planted in 1827, and about 20 years ago they grafted some new vines onto that rootstock, which is likely the oldest in the country.

Now one of the 'uncles' doesn't like oak, so they make their malbec/cabernet blends without oak, but the wines are so powerful and concentrated you can hardly tell. Their top of the line is 17.4% alcohol!

I personally like the one that is 16.1%. The other is just too much for me.

They sold some of their vineyards to a swiss guy named Donald Hess who is very rich, made a fortune as a winemaker I think, and this guy has apparently built this incredible bodega way up there in the north of argentina, near the border with bolivia. He's put over $30 million into the place, in the middle of nowhere...There is an inn that you can stay at, has about 10 rooms? It has Matisse's hanging on the walls. And it's always full. I imagine it's VERY expensive.

Apparently he built a $17 million museum there to house part of his art collection.

Anyway, this wine is called Davalos, by Bodega Tacuil, and it's pretty good stuff, especially for the price (starts at $20 and goes up to about $80 for the top of the line).

You probably can't get it outside of argentina yet, although they are trying to find distributors for the USA and europe now. But even then, they only make 200 cases of the Davalos a year...

And I sold 1 bottle already, but I have 2 bottles left.

One for scotty, one for slguy. Looking forward to sharing it!

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slguy says on May 6, 2008, 17:52:

i just hung up from scotty - he sounds great! good spirited and strong! i can't help but believe in the power of positive energy - be it prayer, good wishes, whatever.

Before you throw me out, make sure I pay my bar tab

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christobeldawg says on May 6, 2008, 20:02:

"i can't help but believe in the power of positive energy - be it prayer, good wishes, whatever."

I agree completely, friend

traveling hopefully is always better than arriving

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slguy says on May 6, 2008, 20:48:

bore us with that story? i thought it very cool, i'd love ro see that vineyard one day.

i didn't know one could even HAVE a producing vneyard at 8000 feet...

Before you throw me out, make sure I pay my bar tab

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scotty says on May 6, 2008, 21:49:

Hi kalder, how are things across the pond? you know what i never did find season 6 of the Sheild.
thanks for your support mate,
yea im just taking it one day at a time, i get up, do my usual things around the house, go get my radiation treatment, come home read, tv, talk to firiends on the internet or by phone, take my meds and go to bed. thats a typical day.
you take care mate, and stay in touch,
john...scotty

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 6, 2008, 21:52:

pod...ahhh wine, cheese, yummy, i cant even drink water now, i am at a point where i am living completely from a feed tube. i dream about food and wine and even an iced cold glass of water.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 6, 2008, 21:55:

thanks slguy and dawg. i agree positive thought, prayer, belief that it can be done. i am tired and very thirsty, but the fight goes on. i have only had two days of radiation and already i am tired. well tomorrow is another day, day three of raditaion and only 36 days to go.
take care fellas, later,
scotty...john

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 6, 2008, 21:55:

thanks for the phone call today slguy, good hearing from you.
scotty

Get Rhythm, when you got the blues. Johnny Cash

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goin_south says on May 6, 2008, 22:55:

scotty... not to worry, either. I'm bringing some REAL HAMBURGERS (if I have to fix them myself!) to the party. (F**k those Corral burgers,.).....

Hey! Great to hear some good news!
Hey, scotty.... THINGS HERE ARE...... WUNDERBAR!!!!!!!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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Man Tequila says on May 7, 2008, 00:30:

Man, I would have given you an eagle, nude woman or nude eagle woman. At least theycould have put enough black dots there that you could connect them to form something better.

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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scotty says on May 7, 2008, 02:52:

GS you gonna make some cajun burgers man? yum yum yum!
i cant swallow anymore so everything is through the tube. i just fed myself a shot of gatorade, flollowed by my medication all chopped up and in water, and topped it of with some H2O. yummy now im ready for bed.

MT, well i told them if your gonna ne puttin dots on me at least make a smiley face ot a domino or something, they chuckled and did exactly what they wanted to do.

they are a couple of good ladies that are doing the radiation, they are friendly and helpful, very informative they tell me all about the system and how it works, it takes my mind off whats happening.

later amigos i gots to get some sleep

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 7, 2008, 05:14:

John- Season 6 is out on DVD. Thing is, it's only about 10 episodes long- it's more in the way of an extension of Season 6 than one in its own right. But, trust me, it's worth watching.

Oh, that's weird- I've just looked at it on Amazon...It's out in the UK, but not in the States. You'll have to pre-order it.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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billyb says on May 7, 2008, 07:12:

Hey Scotty glad to hear the good news.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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houstongal (Trustee board) says on May 7, 2008, 08:33:

I too am glad that John is doing well. We'll get him through these 36 days, one day at a time! I think his future is looking brighter every day! :-)

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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podborski says on May 7, 2008, 15:39:

just popping in to say hi to everyone, and see how scotty's doing tonight.

it'll be a rough 36 days scotty, but you can do it. hope you can keep updating us.

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scotty says on May 7, 2008, 16:15:

hi, just got back from radiation treatment number 3, 3 down and 35 to go. also they took blood, htey are getting ready to schedule chemo treatments.
had 2 friends come by last night, they cleaned my carpet and did some laundry for me, we visited for about 2 hours, very nice people.
i cant swallow anything now and it really bugs me, i would love to have a tall glass of ice water right now.
im just hanging in the guys, taking it one day at a time.
you all take care and thanks for your support.
john - scotty

Get Rhythm, when you got the blues. Johnny Cash

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CatGirl says on May 7, 2008, 16:21:

Hang in there John ;))

Love and Time: the only two things that cannot be bought, but only spent

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goin_south says on May 7, 2008, 17:00:

Buenas Tardes, John!!
thinking aboutcha.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on May 8, 2008, 02:23:

billyb - how are things in Gods country? i love the area you live in, i spent some teenage years up there..absolutely beautiful country.

HG - i checked out your blog, nice, you gonna get some more picks on there? i like your map.

Pod - yea, i have only completed 3 radiations and i have already had enough, my throat burns, oh well 35 to go. and chemo starts up soon maybe on Monday, that should knock whatever energy i now have right out of me.

catgirl - thanks, its all about one day at a time.

GS - buenas tardes to you to amigo. thanks for the call the other night.

off to bed guys, the nurse is here in the morning and its radiation in the after noon, what a full and fun day i have planned.

take care all
scotty - john

Get Rhythm, when you got the blues. Johnny Cash

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billyb says on May 8, 2008, 06:36:

Hey John, things are good here, weather is beautiful. I remember you telling me that you spent some time here, up around Napa and Lake Berryessa, right? Take care and keep up the good fight.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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houstongal (Trustee board) says on May 8, 2008, 07:43:

Thx John! Just added more photos and comments today. Check it out!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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goin_south says on May 9, 2008, 00:21:

Lake Berryesa??? Careful billy... I'm certain there's still some hallucinogenic chemicals alive and well in that lake! jaja

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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billyb says on May 9, 2008, 07:14:

jajaja, that must be what's wrong with me.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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CatGirl says on May 9, 2008, 07:22:

BillyB...God's Country? Where are you Amor?

Love and Time: the only two things that cannot be bought, but only spent

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goin_south says on May 9, 2008, 12:53:

He doesn't know (where he's at);
he thought he was at Lake Berryesa.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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CatGirl says on May 9, 2008, 14:42:

Yuk! Lake Berryesa!!? That is sooooo tourisity. Are you serious BB?

Or are you simply up in Lake County Land

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 9, 2008, 23:17:

northern calif. Gods country! napa valley Gods country.

Get Rhythm, when you got the blues. Johnny Cash

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CatGirl says on May 9, 2008, 23:22:

Yes! Northern Ca is GODs country....must agree. I love it here. But only tourists got to Berryessa - unless they live there of course or are under 25 years old and want to get drunk and arrested jaja

Love and Time: the only two things that cannot be bought, but only spent

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goin_south says on May 9, 2008, 23:23:

Now, Scotty! Hell, I've been thinking for the past three years...listening to all these colombians.. that God's Country was 'where I was goin_south'... to see all those pretty colombianitas!.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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billyb says on May 9, 2008, 23:29:

kitty, what tourists? berryessa is locals and bay area lake and is only a few miles from the napa valley, and as scotty spent time there and mentioned that he used to go to the lake as a teenager, why the snootyness?

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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christobeldawg says on May 9, 2008, 23:40:

I think the countryside outside of anyone's town seems always to be their God's country. It's an emotional attachment to the places we love, no?

traveling hopefully is always better than arriving

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scotty says on May 10, 2008, 11:32:

Hi everyone, my weekly update.

I may write a book after all this is over, the experiences i have had with the medical field. Just as i started this post i heard on the news one of the leading stories today is how many people are going into the hospitals of america for a simple proceedure and end up dying from staff infection, i guess its happeneing alot now, i can vouch for that i came close to death simply because the hospital infected me, I ended up spending 6 days fighting for my life, it was pathetic and no one should have to go through it.
there is something wrong in our medical arena these days, there is a lack of professionalism, work over load, under staffed hospitals and the hospitals are actually not being cleaned properly i saw it with my own eyes. Be very careful when you are in a hospital, keep your hands clean, dont touch anything that could infect you or others. the goverment should do a masisve investigation on all the infections that are taking place. 99,000 people have died in the last year from hospital infections, i was almost one of those people. Like i said forget the cancer it doesnt scare me as much as the entire medical/pharmacy industries do.

well anyway not a very exciting week, this week has been radiation treatments every day, which has cause me a very dry mouth, sore throat and has made it impossible for me to swallow even water. what i wouldnt give just to have a tall iced cold glass of water. I swear if/when the day comes that this tunor shrinks a little bit and i am able to drink liquid again, the first thing i am going to do is get a tall glass fill it with ice and water and drink it slowly and enjoy every drop of that water.

several friends stopped by this week to visit and help me do some chores around the house. I have also recieved numerous emails and calls wishing me well. I want to thank all of you for your support and well wishes.

Thanks slguy for knocking on all the right doors. I now have a nurse that checks on me 2 times a week.

I also want to thank all the volunteer drivers that are taking me to my radiation treatments and picking up my meds.

A bunch of classic car enthusiists are forming a special classic car show benefit for me, they are expecting over 500 classic cars, they will have trophys and events. what a great bunch of men and women.

ALL my food , medicine, water, and vitamins are now fed to me through a tube i can no longer swallow, its not fun but i must do what needs to be done to survive..

I meet with my Oncologist on Monday, he will decide when my chemo begins.

Well 38 radiation treatments scheduled, 5 down , 33 to go. Chemo to begin soon.
Dont tell me i dont know how to have a good time. why go to Colombia when i can be here doing this stuff. just a weird since of humor , trying to laugh my way through this stuff.

Again thanks everyone for your support, if you have any questions or comments please feel free to ask, i will answer all.

Thanks,
John ( scotty)

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 10, 2008, 12:02:

John- we have exactly the same situation with regards to infections in hospitals in the UK. It's scandalous.

I'm delighted to hear that all your friends are rallying round you. Keep up the good fight brother!

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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scotty says on May 10, 2008, 12:16:

Kalder, its terrible isnt it, someone goes into a hospital for some simple 45 minute prceedure and ends up dying because they infected him...its careless.

yup my buddies are coming to my rescue, they are banning together and planning to put on a huge classic car show the biggest one ever held in this citty. they told me the phone is ringing constantly with people wanting to enter the show or see the show. already hundreds of cars have registered.people are even coming from out of state and out of country. some folks are coming from England to be a part of the show.

i am very excited about this, this has raised my spirits to a new level.

thnaks for your support kalder, you are a good guy.

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 10, 2008, 12:20:

It's my pleasure John. It's great to hear you in good spirits.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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goin_south says on May 10, 2008, 13:54:

Maybe kalder kan hide in the drunk of that car coming from England ;-))

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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Corey3368 says on May 10, 2008, 14:05:

Just want to wish you all the best. I am praying for you and I just feel in my heart you are going to make it through this and be better then ever.

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scotty says on May 10, 2008, 14:43:

GS, you are so funny, you crack me up dude.

kalder, you da man!

Corey, thanks for your prayers and good wishes. I came home from the hospital after fighting a staff infection for 6 days and i felt terrible i really felt like i was dying, but now i have a whole new attitude, i think im going to beat this damn thing. i think it can be done and im going for it!
I dont care what it takes to get the job done...with the support of friends, im gonna whip this thing

Get Rhythm, when you got the blues. Johnny Cash

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Portena says on May 10, 2008, 15:53:

You're a real trooper, Scotty! You are going to beat the cancer! Hang in there!

Prophesy is a good line of business, but it is full of risks ~ Mark Twain

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scotty says on May 10, 2008, 17:37:

thanks Portena, i have to beat this thing, i have so much more i need to do including a party in Bogota and in Cali. i got places to go and things to do and im not letting some stupid cancer change my plans. this cancer has no idea what it is in for, it has picked on the wrong guy. we are going to zap this thing with radiation until it backs down and goes away.

Get Rhythm, when you got the blues. Johnny Cash

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CatGirl says on May 10, 2008, 18:05:

Hi Scotty nice to hear from you...just a heads up

"how many people are going into the hospitals of america for a simple proceedure and end up dying from staff infection:

The problem is this Scotty...the hospital does not do this usually - at least not "staph" infections. Staph is all over your body BTW. It is the Normal flora and fauna of your skin, but when you have a break in the skin - (like when people touch there wounds) or a compromised immune system there is a problem. Same with E Coli. Ecoli lives in your lower bowel. But it is only safe there and is the flora and fauna. But it is deadly anywhere else

If you got a bug that they call MRSA or VRE - this is more deadly and usually found in hospitals or instituations. Problem is - theses are the result of people taking too many antibiotics and making the bug resistant to antibiotics - these infections can kill a person.
Also if you get a wound infection that is Aspergillis (sp?) - this is usually from the hospital and someone was not wearing a mask! It is usually from someone's exhalations...

OK - either way - good to hear you are educating yourself. Just wash your hands before you touch incisions or dont touch at all - that's how you get staph most the time :))

Love and Time: the only two things that cannot be bought, but only spent

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Corey3368 says on May 10, 2008, 20:50:

Scooty,
Good to see you have a positive attitude......That is what it is about and the first step in getting better.

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scotty says on May 10, 2008, 21:32:

cat...thanks for the education, interesting.

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on May 11, 2008, 02:15:

John...one week down....6 more to go! :-) Keep on fighting!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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scotty says on May 11, 2008, 08:14:

HG, yup, one down 6 to go, i can do it, i knowits gonna be hard but im gonna do it!

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 11, 2008, 08:49:

I've no doubt of that John!

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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podborski says on May 11, 2008, 14:12:

Hiya scotty!

the car show sounds great, really glad to hear you in such good spirits too. No question you are going to beat this scotty.

I just need to know when the parties are scheduled so I can make sure to be there too.

(as for g-s's comment about kalder being in the 'drunk' of the car, there's a freudian slip if ever there was one!)

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goin_south says on May 11, 2008, 16:34:

'creative writing class'.... I-Pod!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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goin_south says on May 12, 2008, 23:24:

Hola Huskie!
Como esta?

and, you too, scotty???

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on May 13, 2008, 00:48:

well today was a long day, i went in for my radiation treatment, got that, but then the oncologist asked to talk to me and we ended up spending 2 1/2 hours longer at the clinic. they gave me a tour of the chemo area, and explained what i can expect in the near future. it appears that i must once again go into the hospital for another surgery to have a port put into my chest. and beginning next week i will be recieving chemo 4 hours a day.
so i will go into the clinic in the mornings recieve 4 hours of chemo, then walk down the hall lay down on the table and recieve 15-20 minutes of radiation, go home and start all over again the next morning.
so i guess the really tough part is about to begin.
wish me luck everyone and i will keep you posted.
everyone take care,
john, scotty

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 13, 2008, 04:53:

I wish you all the luck in the world John. Your forthcoming treatment sounds quite an ordeal. But you're looking at it in the eye alright. You're the right stuff.

God bless, take care and keep us posted.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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scotty says on May 13, 2008, 05:23:

huskie, what kind of pain and suffering have you had? are you a former cancer pateint? are you still ill? hope you are better now.

Get Rhythm, when you got the blues. Johnny Cash

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houstongal (Trustee board) says on May 13, 2008, 08:19:

John - Do you have an mp3 player to be able to listen to during these treatments? Could we all start sending you music to fill those hours with some PBH joy?

Anyone else have any ideas on things we can do to help John endure these hours of treatment? His treatment almost sounds like a full-time job!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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CatGirl says on May 13, 2008, 10:04:

Hi Scotty - thank for the update. Yes, the intravenous medications are best given through bigger vessels. They will more than likely put that port in the upper left part of your chest (depends). Depending on the State you live in .... you will more than likely have Licensed Nurse watching it and changing the dressing every 3 days ;))
Hang in there. Have they mentioned any support groups for you to connect with that are going throught the same thing?

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 13, 2008, 12:03:

huskie...you hang in there, you sound like a tough person so you just hang in there, and i wish you the best with everything.

HG, hi no i dont have a mp3, however i do have an old fashioned portable Cd player and i have hundreds of excellent Cds so i will just take that thing with me and a coupe of Cds to pass the time. also they have computers there i may just get on line and talk to you guys while recieving chemo? so dont be surprised if you guys get a post saying "scotty live from the chemo clinic"

catgirl- are you a nurse? because you seem to know alot about this sort of thing? yes you are right they will place the port on my left chest and a nurse will check on me to make sure everything is ok.
i have not found any local support groups but i have found a online group that is nation wide and i founda man here in Phoenix with the same cancer and we communicate daily.

Get Rhythm, when you got the blues. Johnny Cash

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Tinto (Moderator) (Trustee board) says on May 13, 2008, 13:03:

Scotty, Have you talked to the hospital's patient advocate or their social services person or called your local United Way? You're in a big city with a lot of middle-aged to retired people and I'd bet there are all kinds of support groups for people with cancer. If Phoenix is anything like Minneapolis, you'll even find support groups organized by your clinic or hospital in a couple of non-English languages. They're out there; ask someone to help you find them. Good luck!

I wanted access to health care, housing and education, but, no, I get potholes, trash and silicone tits instead. -Desi.

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CatGirl says on May 13, 2008, 13:05:

John - I am in the medical field and both of my parents are too. Been around many things.

("twas not too popular in high school when I invited friends over for dinner and my father was on the phone talking about heart transplants and infections over the telephone while my pals would gag, jajaja)

Love and Time: the only two things that cannot be bought, but only spent

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CatGirl says on May 13, 2008, 13:08:

Also, my best friend died from Cancer at a young age. They caught it too late. Ii helped take care of her ;))

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 13, 2008, 16:43:

Hi Tinto, well actually i am surprised that a city this size has so few support groups in fact i only found one and they only meet once a month. i did find one on line that i on occasion get on and chat and learn alot.


cat, i thought you might be in the medical field just by the way you talk. i thank you for all your support and suggestions. sorry to hear about your friend, cancer is a monsterand it can attack anyone, any age any race, it is an equal opportunity killer.
i hope i have caught mine in time. take care all

Get Rhythm, when you got the blues. Johnny Cash

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El Polo says on May 13, 2008, 16:49:

get well soon scott!

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scotty says on May 13, 2008, 19:52:

thanks El Polo.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 13, 2008, 22:10:

thanks LilaM , its one day at time.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 15, 2008, 09:12:

thanks tony, i will try it.

Get Rhythm, when you got the blues. Johnny Cash

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CatGirl says on May 15, 2008, 11:38:

TB - nice affirmation. It is true too, as the mind is part of the body ;))

Love and Time: the only two things that cannot be bought, but only spent

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kalder says on May 16, 2008, 13:19:

John- I'm listening to The Belmonts, The Elegants, Bobby Darin and so on tonight. As I recall, that's your kind of music. Thinking of you. God bless.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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scotty says on May 16, 2008, 19:27:

TB i will check out the books, thanks
.
Kalder, how are things across the pond mi amigo?
Yea, i like all music from Salsa to Doo Wop, to Rock to easy listening to Blues to whatever.Im also a big fan of the Beatles , Animals, Led Zeppelin, Stones, DC-5.
However when i am in a relaxing mood and just want to hear some background music while on the computer or doing some paper work i always put on the sounds of the early 60s like you said the Belmonts, Elegants, 4 seasons, bobby darin, Booker T & the MG's, Randy & the Rainbows, the Ronnettes, Chantels, Frankie Lymon, Del Vikings, Bobby Vee, and several others.
Thanks for thinking about me, im still here and still fighting the fight, ONE DAY AT A TIME.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 16, 2008, 19:30:

Thsi radiation has really been beating me down, i am mush more tired than before. i have completed 10 treatments and have 28 to go.
when i get some strength i will post my weekly update, maybe later tonight or tomorrow.
take care all
scotty/john

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 16, 2008, 19:43:

hey kalder, in your internet travels if you happen to come across a Dion and the Belmonts singing the song RUBY BABYwould you throw that up on the thread for me, i love that song. I do recall seeing on You Tube a vido of RUBY BABY i think the video was "Dion-Ruby Baby (TV appearance 1963) ??
scotty

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 17, 2008, 11:41:

Hi everyone, time for a weekly update. I will tell you that the weekly updates are probably going to be farther apart and shorter. The fact is that i am just getting tired and i am having trouble sleeping and added to that i am having some anxiety problems, also my chemo starts thursday and i know thats going to knock the wind out of me. so please excuse me if the posts get farther apart and less substance.

well lets see, its been a typical radiation week, i had radiation treatments 5 days in a row, that completes a total of 10 treatments and 28 to go. whew! the radiation has caused me to have a very uncomfortable raw feeling in my throat and fatigue.

Monday i go back into the hospital for an outpatient surgery, i am having a port placed in my chest for the chemo treatments. the surgery will be about one hour. I am really not looking forward to this mainly because i am just tired of being cut and having my body abused so much, however it is something that must be done so here we go again.

Thursday my chemo treatments begin, they will last 4 hours a day and on the weekend they will send a pump home with me to continue the chemo even while at home on the weekend.
the schedule for me is 4 hours a day hooked up to chemo then radiation for 15 minutes, both everyday 5 days a week.

to be honest with you im burnt out, i am not looking forward to any of this.

the state of Arizona in all their wisdom sent me about 25 forms to fill out asking for all kinds of certificates and copies of everything in my life from birth to now. What a pain in the butt, i spent an entire day trying to find all these silly documents they requested. this country is so much in need of a decent medical system, the system now in place certainly is not patient friendly.

well i guess thats about it for now, i have a big week ahead of me.

i hope you are all doing fine, take care,

scotty/john

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on May 17, 2008, 13:43:

hiya scotty, well you sure have a tough road ahead of you, but you can do it.

I´m don't know much about medicine, but I do trust doctors. I'd follow their advice, although a second opinion never hurt.

My mom finished her chemo last month and her radiation this month, and she feels great.

So you can do it too.

wishing you all the best

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scotty says on May 17, 2008, 18:24:

Tony Blair - its really a little to late for me to be getting second opinions, i am a stage 3 cancer, a tumor that has blocked off my esophagus, i am into this treatments and going for it. i do not have the time to be running around getting opinions. either this works or it doesnt. thanks for your thoughts but time is not on my side.

Pod - God Bless your mom. so she completed her radiation and her chemo and she is feeling fine now? thats great! i hope thats what happened to me.
One of the nurses at the cancer clinic told me an interesting story about a man who came to my doctor from Texas. in Texas they told this man who had EC like me that he was going to die and he had only a few weeks left to live. he called my doctor, flew to Phoenix and my doctor put him on a treatment program, that wss about a month ago he is still alive and the cancer is in remission.
so for now i think i will stick with this doctor.

Huskie - the doctor told me flat out he only wants 3 things foing into my tube 1. the liquid nutrition they furnish for me, 2. water, 3. deluted medication. nothing else.. good idea for the music but i will sleep better with the earlt Beatles playing on the CD. but you are right..its all about relax relax relax.

Tony - you are right the whole medical/pharmacutical/ insurance industry is about money, however, its still the best game in town, until something comes along better the doctors are the way to go.

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on May 17, 2008, 22:29:

I agree that often it's about the money, but most doctors realize doing the right thing and making the most money, in the long run, are not contradictory.

As scotty himself shows, people search out experts who have good track records, and those doctors make a great living doing the right thing. They don't need to lie to anyone.

Nothing is perfect, so scotty's right, IMO, listen to the doctors.

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scotty says on May 17, 2008, 23:06:

Pod you are correct. When a person like myself gets cancer you would be amazed at all the people who suddenly appear with all kinds of cures and treatments and magic pills and herbs and whatever.
i have been approched by all kinds of programs from tea's to herbs to vitamins to enimas to whatever. i am sure that all these methods have some sort of positive research behind them. however, regardless of how much the medical industry has pissed me off they are still the best game in town so i have turned over my life to them hoping they will take care of me and help me to heal. this combined with prayer and support of friends hopefully will save my life.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 17, 2008, 23:09:

a quick note to members, you will probably be hearing less and less from me as i must tell you i am becoming very tired and weak and once the chemo begins i am certain i will become even weaker, even now as i type this i feel very weak and fatigued. so please excuse me if my posts and responces to your posts become fewer and farther between.
thank you,
john/scotty

Get Rhythm, when you got the blues. Johnny Cash

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Robert Jorge says on May 18, 2008, 01:10:

In tears, but just wanted to let you know you are in my thoughts Scotty. GS keeps me updated. It sucks, I don't know what to say. Everything I type I erase, because it seems selfish. But anyway, love you brother and you got a friend in NW Florida thinking about you all the time.

"You can not take the barrio out of the girl you really can't." Oneforamillion

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scotty says on May 18, 2008, 08:22:

RJ, thank you my friend. Its good to hear from you and good to know that i have your support.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 18, 2008, 14:42:

thanks huskie and thanks kat1.

Get Rhythm, when you got the blues. Johnny Cash

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DodgerDogs says on May 19, 2008, 08:51:

Scotty,
Stay cool and take care.
God Bless, Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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goin_south says on May 19, 2008, 11:30:

Confirming to a large degree, what tb says,... a book I read long ago before professional school... Witch Doctor's in Africa get about the same results as modern medicine.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on May 19, 2008, 21:15:

thanks Dodger i appreciate your support.

yea modern medicine is indeed something to be questioned but at the same time there arent that many alternatives.

i just close my eyes and hope the doctors dont kill me. so far (except for the infection) i have had decent luck.

had my surgery today and had my port installed, everything went fine, im home now healing.

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on May 20, 2008, 13:50:

hey scotty, glad to hear you are back home, recovering. Step by step...

hope you keep feeling well enough to update us.

take care, all the best

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scotty says on May 20, 2008, 17:17:

i will talk later, i am exhausted right now.
scotty

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 21, 2008, 10:45:

Finally something positive happening. Today i was able to drink a 1/2 cup of water with out any problems. I beleive the tumor is shrinking and opening up the esophagus allowing water to flow . am so excited by this i may just drink another cup of water.

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on May 21, 2008, 17:46:

good news scotty! enjoy it!

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scotty says on May 21, 2008, 18:57:

huskie, pod anf LilaM - yea i am so happy i cant stand it. for 3 weeks i have not been able to eat or drink anything, so for me to be able to just sip a half a cup of water was great. it does go down very slow and only in small sips but hey, water is water no matter how it goes down. i am going to attempt another 1/2 cup this evening.

tomorrow is my first day of chemo, i am very nervous about this as i have heard many stories of the side effects. i have no choice the chemo is part of the program , so wish me luck on the chemo.
besides the chemo i have to also get radiation on the same day.

all of you take care and thanks for all the well wishes and support

scotty/john

Get Rhythm, when you got the blues. Johnny Cash

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Monpirri says on May 21, 2008, 18:58:

Scotty, as soon as you are reay to eat real food have a big sanchocho de gallina, one large bowl every other day! :>)
I am glad you are back home, sweet home.

"Anyone who still thinks that Colombia is not a gastronomical paradise needs to have their head examined." Darloup

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Portena says on May 21, 2008, 20:32:

I'm so pleased to hear that you are able to enjoy a drink of water again! That is real progress and great news!

Prophesy is a good line of business, but it is full of risks ~ Mark Twain

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goin_south says on May 21, 2008, 22:45:

Goooo! Scotty!
Goooooooooooooooooo!!!!!!!

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on May 21, 2008, 23:26:

tomorrow is the big day and to be honest with you im a little nervous. tomorrow i not only go in for my radiation treatment which just about wipes me out everytime i get hit with that radiation but i must also get my port hooked up for the first time and start receiving chemo.
i hope and pray i can withstand it . i certainly am not looking forward to it.
I ask you all to say a prayer for me and help me to receive this chemo and radiation with minimal side effects.
take care everyone,
scotty/john

Get Rhythm, when you got the blues. Johnny Cash

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podborski says on May 22, 2008, 03:30:

I'm not exactly religious scotty but I said a little prayer for you anyway. Good luck today, just think what that chemo is going to do to that tumour, that's the important thing.

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scotty says on May 22, 2008, 09:06:

huskie, i dont have to wait for chemo to get sick. something very strange happened to me last night about midnight.
i was getting ready for bed, took my meds, etc then all the sudden i became very weak, and shaky, i felt light headed, i went to the bathroom to get a wet towel and my face was a very pale white, it looked scary.
i sat down in a recliner and was feeling very very weak, then i fell asleep, I woke up this morning still feeling weak. im not sure whats causing this but i do not feel good at all.
i hope i am able to do radiation and chemo today. im not sure if i can i feel very weak today.
john/scotty

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 22, 2008, 17:03:

today was a miserable day, thats all i have to say.

Get Rhythm, when you got the blues. Johnny Cash

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scotty says on May 23, 2008, 16:46:

i was going to give my weekly update today, but i have just arrived home from the radiation and chemo treatments and i must tell you i am exhausted, this is even worse than i thought it would be.
later,
scotty, john

Get Rhythm, when you got the blues. Johnny Cash

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Corey3368 says on May 23, 2008, 21:59:

Hang in there, you are in all our prayers! Wish you all the best and may the waters begin to calm and you begin to have smooth sailing in beating this.

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goin_south says on May 23, 2008, 23:56:

scotty... .hope you get alot of much-needed rest tonight.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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scotty says on May 24, 2008, 00:38:

Hi Everyone,

well im gonna give you the short version of my weekly update, simply because i am exhausted and i am suffering right now with alot of pain and nausea, so please bear with me.

Monday i went into the hospital, a new hospital ( i wouldnt go anywhere near that place where i had the infection 3 weeks ago). This hospital is 7 months old, very nice and modern and clean and was treated very well. the surgery was a success and i went home that day.

Tuesday and Wednesday i had radiation, thursday and froday i had radiation and chemo on the same day. it was really hard on me.

besides that i now have 2 tubes in my body a feeding tube and a chemo tube, i have a pump that pumps chemo into me 24/7.
yes it is starting to get to me i feel weak, i experience much nausea, i feel dry becaue i am unable to swallow anything.
Its not a pretty situation folks.

On top of all this i have been told by my nurse that she was told to stop coming to assist me, i guess the insurance company has cut me off, why i dont know, im to tired to argue with them. i have also been told by altec that they will not be sending me a assistant..

so here i am alone doing it all for myself while at the same time getting weaker and weaker.

I am so ashamed of the state of arizona and the US medical system and the insurance companies. Its pathertic, i work my whole life and pay into the system and support our country and now when i need help they are not available to me.

well everyone thats about it here.

everyone take care, and God Bless,

scotty, john

Get Rhythm, when you got the blues. Johnny Cash

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webmanco says on May 24, 2008, 00:52:

Nice to hear from you, things will get better.

No hay extremo cierto o verdadero, porque los extremos opacan, enruedan, (lavan cerebros) verdades. Yotas

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scotty says on May 24, 2008, 01:15:

thanks everyone, i am trying, its hard to do alone, i could sure use a assistant here 2 or 3 days a week.
i have always heard that some people experience nausea during chemo, but this is ridiculas what i am experiencing, i am having nausea hourly, and anytime i try to drink anything at all it comes back up violently.

anyway thanks for your support and kind words.

scotty/john

Get Rhythm, when you got the blues. Johnny Cash

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kalder says on May 24, 2008, 02:09:

You're in extremely trying circumstances John. And you are being very shabbily treated by the authorities. But you are being strong beyond compare. You're the right stuf and you're going to see this through.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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scotty says on May 24, 2008, 03:09:

thanks guys, im just trying to make it the best i can. the insurance companies, doctors and other organizations seem to have all the control and they decide what will and will not be done and theres not much i can do about it.
even the so called volunteer organizations are not very reliable.
im not sure what im going to do about this, i feel there is no where left to turn.
i am getting weaker and unable to do simple things around the house, even just changing my bandages is a shore.
thanks for all your good wishes and support guys.
take care,
john/scotty

Get Rhythm, when you got the blues. Johnny Cash

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papiChulo says on May 24, 2008, 03:29:

I am not a religious man but keep strong in your mind, you sound like a survivor... my best thoughts go out there for you.

I'm givin'er... givin'er HARDCORE

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aztec says on May 24, 2008, 14:38:

scotty, I understand the overwhelming burden of keeping up with the insurance. When my wife had leukemia I had two secretaries managing the paperwork for the hospital and doctors insurance. It is not easy and frankly I could not handle it and I was not sick.

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CatGirl says on May 24, 2008, 19:21:

Scotty - Listen - I don;t know all the details of your paperwork or case, nor your insurance issues andI know this sounds the opposite of what I have told you before, but if you need care and are at a point where you may not be able to care for yourself, you may need to start going to the emergency room again. They cannot deny your requests. They may even admit you. Try to go to a hospital that is not considered a "trauma" hospital,,,they will have more beds available. (trauma centers are hospital designated for urgent emergencies, such as car accidents, gunshot wounds etc..).
PLease call someone and make sure you have a contact person for emergencies ;)

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on May 25, 2008, 06:52:

no ER for me, been there done that.

i have a few friends donating some mony to me, im going to use that money to hire a nurse to check in on me 3 or 4 times a week.

Get Rhythm, when you got the blues. Johnny Cash

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CatGirl says on May 25, 2008, 14:00:

EXCELLENT idea. (even better).
Another tip: I am not sure if you know the names of the nurses that came out or even better kept the # of the agency? If you are at all able to call or have a family member call and speak to a few of them and ask them if they personally know anyone that can take care of you?
Typically, most HH agencies will have their staff sign a contract stating they "own" their staff for the duration of employment. Some staff will and have worked on the side (but you cannot say anything to the agency or they can get fired). Either way, an innocent call to the agency asking if they "know" anyone won't hurt.
I say this, becuse there is A LOT of Fraud in this area too Amor. Don't forget you are allowing these people into your home ;)
Agencies do full background checks on their staff and ensure they have a good record. I have seen some horrific things. Sad, but there are people out there advertising they will take care or be live ins and are Beyond Shady.
I recommend you try to get someone from the agency to recommend or may do something on the side.
Again, maybe I am getting ahead of myself....ask if the agency has private pay - some do and then you are covered even more.;))

Love and Time: the only two things that cannot be bought, but only spent

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CatGirl says on May 25, 2008, 14:01:

BTW - hugs to you John....keep up the good positive attitude

Love and Time: the only two things that cannot be bought, but only spent

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DodgerDogs says on May 27, 2008, 10:50:

Scotty,
Hope you have a good day, and as always take and know your in my prayers.

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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scotty says on May 28, 2008, 18:07:

im very sick, having problems, cant get help, i will keep you posted when i have more strength.

Get Rhythm, when you got the blues. Johnny Cash

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Man Tequila says on May 28, 2008, 19:19:

Keep us posted, John.

Aunque no me creas/ si me lo propongo/ lograre olvidarte/ porque a fin de cuentas/ no soy tan cobarde./ Y termino todo una de estas tardes/ no sera dificil buscar algún sitio donde refugiarme/ donde nunca mas vuelvas a encontrarme. (Polo Montañez)

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christobeldawg says on May 28, 2008, 21:52:

sorry John, that you are having a rough time of it. I hope you can get help soon with the problems.

traveling hopefully is always better than arriving

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kalder says on May 28, 2008, 22:59:

You're in my thoughts John.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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podborski says on May 30, 2008, 19:30:

Hey scotty, let us know how you are, I know it must be tough. Give us a quick update if you can.

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goin_south says on May 31, 2008, 07:39:

Good Morning, John!
thinkin 'bout you.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Jun 1, 2008, 07:06:

That's perfect Lila!

John - Keep the hope alive!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jun 3, 2008, 07:43:

I received an email from one of John's friends with an update. He needs our prayers folks!

Good morning, I have managed to talk with a neighbor and John was taken by ambulance to Banner Baywood Hopsital on Sunday. He had visitors and they called 911 because John was complaining of having a hard time breathing and was spitting up some blood. The number there is 480-321-2000. It is located at
6744 E Baywood Avenue, Mesa, AZ 85206. I hope this will help.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jun 3, 2008, 08:24:

The saga worsens according to another of John's friends:

I called the hospital a bit ago and there is no record of his being there in the last 2 weeks? Apparently all the negative comments Johnny has made about this house of horrors is correct. They can't even maintain records.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jun 3, 2008, 10:51:

The final word from John's friends:

John is at Banner Gateway hospital 480-543-2000 Room 1321

"A- 3 - East" -- I spoke with Nurse' s Station - I wanted them to tell me HOW he's doing, but NOT put me through. HOWEVER, , they ("Michelle") put me through to him.
He had asked for calls to NOT be put through, because so busy. :-(

He said he's "right in the middle of lotsa nurses doing lotsa things. I've got an infection. not doing good." (He sounded anxious, but alert, thinking clearly.) He seemed glad I had called, and he really had to get off the phone. I told him that I or "someone" would call him later today.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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goin_south says on Jun 3, 2008, 11:07:

you are an angel... Houstongal.
thanks for helping (our friend)

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Jun 3, 2008, 13:15:

Apparently John requests that we hold off on calling for a few days. It's a busy time for him and he's getting lots of calls. Spacing the calls out a bit would be best.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jun 3, 2008, 19:52:

One more update....John is being overwhelmed with calls and asks that friends not call the hospital so he's able to rest. His sister has created a site to keep friends updated on his health. Feel free to sign in and leave a message of support.

To visit the CarePage, please click the link below:

http://www.carepages.com/ServeCarePage?cpn=JohnBryceland&ipc=cpinviteemail">http://www.carepages.com/ServeCarePage?cpn=JohnBryceland&ipc=cpinvitee...

(If you cannot click through this link, please copy and paste the entire
URL into your browser's address window.)

...or you can use these manual instructions:

1. Go to http://www.carepages.com
2. Click "Visit a CarePage"
3. Register (first-time users only)
4. After you've registered, enter the exact CarePage Name below:

JohnBryceland

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jun 5, 2008, 18:25:

The latest update on John copied from his CarePage:

Good news! John is scheduled for release from the hospital Friday or Saturday.
His white cell count is improved. No word yet on when treatments will resume.

It's our understanding a "home care" nurse will visit John a couple of days a week to check the feeding tube. However, the nurse determines how long that care will continue and if John is managing okay, that visit will be discontinued. We understand his insurance will not cover additional home care and that he doesn't qualify for long-term care, yet. In the meantime, our sister will work with John to continue pursuing advocacy options and caregiver options. Thank you for the many suggestions that have been given.

He's to avoid PLANTS and PETS (and PEOPLE as much as possible for a while). However, I'm sure he'll be happy to see friends and he'll be needing assistance for a lot of things to keep him going at home. Anyone planning to visit John once he is home will likely be requested to wear a mask, take off their shoes and observe other precautions to keep his environment as sterile as possible.

The social worker at the hospital has indicated that John will be best off at home as he has no pets, plants, and living alone is actually exposed to fewer germs than in another household or facility. However, should that not work, he has the option of staying with our sister. She'll also discuss with him the emergency button idea which will go a long way toward reducing the anxiety of being alone while he is recovering.

I will post in a week if John is not up to email just yet, otherwise this may be the last update for now. Hopefully, he'll feel well enough to check his email messages, soon. Our sister will have printed all your well wishes from the CarePage and delivered to him today. Thank you for your support.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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goin_south says on Jun 5, 2008, 18:27:

and Thanks, Hg.
Sinceremente.

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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goin_south says on Jun 9, 2008, 18:16:

Hg,... any updates on our friend, Scotty?

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Jun 9, 2008, 19:51:

The last update was that he was not going to be released from the hospital on Saturday, as originally expected. I haven't heard anything since then (Friday). The positive is that they were keeping him in the hospital a little longer so that he can regain some strength with physical therapy before releasing him. Hopefully he's improving.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jun 10, 2008, 06:00:

Thanks Huskie! Hopefully John will check in on PBH and see that we're still here for him.

John - I'm glad to hear you're home in your familiar surroundings. Please continue to regain your strength and improve in the comfort of your home.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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kalder says on Jun 10, 2008, 07:57:

Yes, it's good to know you're back home. Good man yourself- you're like Theseus coming out of the Labyrinth.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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CatGirl says on Jun 10, 2008, 14:47:

HG - you are definitely the PBH hostess with the mostest ;)) Thanks for your updates and caring actions.

Scotty - our thoughts are with you :)

Love and Time: the only two things that cannot be bought, but only spent

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scotty says on Jun 11, 2008, 15:02:

hi everyone, im home now but very weak and sick., i spend very little time on the phone or the internet simply because i dont have the strength. i was taken by ambulance last Sunday to the hospital because i was very weak and sickly. there was no blood as someone reported. i spent 7 days in the hospital fighting a infection and low white cell count plus low potasium. when the infection went away and the counts came up they released me and im back home now. i am very weak and need rest i actually prefer than you do not calll me. i will check this site occasionally and respond best i can.
please understand i am ver=y weak , and basically i just need medication and rest and your prayers.
thank you all for your concerns and your support
john/scotty

Get Rhythm, when you got the blues. Johnny Cash

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Monpirri says on Jun 11, 2008, 15:08:

Dear Scotty I got you in my prayers, be strong and patient.

Monpirri

"Anyone who still thinks that Colombia is not a gastronomical paradise needs to have their head examined." Darloup

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houstongal (Trustee board) says on Jun 11, 2008, 21:00:

John - Thanks for expending your limited energy to keep us posted. You're as much in our hearts and minds as we seem to be in yours. Keep getting stronger!

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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christobeldawg says on Jun 11, 2008, 21:03:

John, you are in our prayers.

traveling hopefully is always better than arriving

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CatGirl says on Jun 11, 2008, 21:52:

John - checking in and thinking of you ;))

Puurr

Love and Time: the only two things that cannot be bought, but only spent

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DodgerDogs says on Jun 13, 2008, 13:12:

Scotty:
Keep fighting and keep wining. I keep you in my thoughts and prayers daily.

God Bless, de Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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scotty says on Jun 14, 2008, 22:48:

still here, still weak, still doing everything alone, still no insurance help. not much has changed here.
if anything new happens i will post it.
thank you all for the support and prayers.
john/scotty

Get Rhythm, when you got the blues. Johnny Cash

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billyb says on Jun 15, 2008, 00:03:

Hey John, sitting here pulling for you.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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DodgerDogs says on Jun 17, 2008, 13:58:

Scooty,
Stay cool and keep on keeping on.

God Bless de Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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MaFe says on Jun 17, 2008, 17:15:

Stay strong! You are in my and my families prayers...

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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kalder says on Jun 19, 2008, 00:26:

Good morning to you John from across the Pond. You're in my thoughts. God bless!

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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houstongal (Trustee board) says on Jun 23, 2008, 16:42:

Latest news about John from one of his siblings:

News is sort of at a standstill. According to our sister, John has 8-9 more radiation treatments and will learn this week about resuming chemo.

Thank you for your continued support and for checking in on him, I'm sure he appreciates it, but doesn't often feel well enough to respond.

There will not be another update unless I hear from our sister that there is significant news or a dramatic change. In the meantime, it is possible John will reply to your emails individually with more details. Please continue to be patient when you contact him. He will respond as he feels up to it.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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DodgerDogs says on Jun 24, 2008, 13:42:

Scotty;
Hope today is a good day for you.
God Bless de Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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houstongal (Trustee board) says on Jul 1, 2008, 08:11:

The latest news from Scotty's sister is pasted below. I'm glad to hear he's continuing to survive his treatments.

Hello all,

This is a quote from John himself... "tell my friends that there's nothing new to
report, I'm receiving treatments and resting a lot."

Keep him in your thoughts and prayers, but for now in order to get his rest,
he seldom takes calls and says he doesn't even fire up his computer very often. So don't worry if you're not hearing from him.

We'll be back to you if anything changes.

And again, thanks for your continued friendship and support.

Debbie

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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kalder says on Jul 1, 2008, 09:54:

Thank you for the update Houston.

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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houstongal (Trustee board) says on Jul 6, 2008, 11:11:

The latest update about Scotty from his sister. Good news! I'm glad to hear that they separated the chemo from the radiation treatment. Doing it together was really hard for him.

July 06, 2008 at 12:54 PM CDT

Hi all,

I just got a short email from John asking me to ..."say hi to everyone for me."

He also reports that Monday is his last radiation treatment with chemo to begin in 3 weeks. Until then, he continues to rest.

Debbie

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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webmanco says on Jul 6, 2008, 11:33:

Thanks HG, say hi from me. I wish him the best.

No hay extremo cierto o verdadero, porque los extremos opacan, enruedan, (lavan cerebros) verdades. Yotas

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houstongal (Trustee board) says on Jul 6, 2008, 18:03:

I just got the following from John personally. Y'all need to write or call him!!!
-------------------------------------------
Yeah I just finished number 36 radiation treatment, now I will have 3 weeks off to recover, then I start chemo.

Im more bored than anything, stuck in the house day and night.

Please say hello to everyone on PBH for me.

Take care,

John/scotty

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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houstongal (Trustee board) says on Jul 7, 2008, 10:36:

Elmo - I sent John your wishes and here's his reply. I think he's feeling a bit feisty. I had no idea he'd respond like this!
-------------------
First off….im a Independent not a Republican. Second the slaughter wont be on the Republicans it will be on America.

Third…well there is no 3rd, im just living day to day trying to survive a horrible cancer. Politics really don’t interest me much right now I have much bigger problems.

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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DodgerDogs says on Jul 14, 2008, 11:11:

Scotty,
I hope your doing better, your still in my prayers

God Bless, de Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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MaFe says on Jul 14, 2008, 11:44:

John I was happy to see you poting here yesterday! Stay strong.. border=

"All human actions have one or more of these seven causes: chance, nature, compulsions, habit, reason, passion, desire. "-Aristotle

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Monpirri says on Jul 16, 2008, 20:14:

Scotty, it looks like you are getting a bit better, that's awesome!
I also keep you in my prayers!

"Anyone who still thinks that Colombia is not a gastronomical paradise needs to have their head examined." Darloup

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DodgerDogs says on Jul 22, 2008, 08:27:

Scotty, stay strong and stay cool.
God Bless,de Dodger

Our lives begin to end the day we become silent about things that matter.Martin Luther King:

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christobeldawg says on Jul 29, 2008, 20:53:

Hey John, had an El Corral burger in your honor today. Hope you're feeling better.

traveling hopefully is always better than arriving

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goin_south says on Jul 30, 2008, 00:03:

sloppiest burger on de planeta.
Good Luck.
Dawg... did you recover yet?

nothin I say is to be takn for my words, but rather for the words of Sailor Jerry.

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houstongal (Trustee board) says on Jul 31, 2008, 20:36:

WOW! Just got good news about John!!!! This is amazing!!! Let's keep up the prayers and support!
----------------------------
All,
I just heard from our sister and the news is terrific!
John's Ct scan came back negative! And, we are all so happy his tumor is in remission.

He's working on soft foods and can eat pudding etc. Because his throat is inflamed from the radiation, eating solids will be a slow process. He'll remain on the feeding tube until he can eat more. He was in the hospital for a few days because his feeding tube was leaking and he needed a mini surgery to fix the problem.

Chemo will start after he gains more weight. We'll keep you posted.

Needless to say, for now he is in excellent spirits.

Thanks to all of you for cheering John on. Your concern is very important to the healing process and very appreciated as we all celebrate this milestone together.

I'll post the next time we have significant news to share.

Debbie

"It is now official: there's no place on earth where you will not find a Peruvian band." David Sedaris

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billyb says on Jul 31, 2008, 21:37:

great news about John.

"All I want to know is where I'm going to die, so I never go there" Unkown (at least to me) wise man.

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Corey3368 says on Aug 14, 2008, 12:52:

Great news Scott..............you have been in my prayers...............It's great to hear some positive news!

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kalder says on Aug 14, 2008, 17:12:

Nice one!

"A piece of cheese may entrap a mouse, but a bicycle could ensnare the Imperial Chancellor."~~An Bai Kuang

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